ON LINE PETITION RE: MALE PATIENTS AND ABOG

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Re: ON LINE PETITION RE: MALE PATIENTS AND ABOG

Postby Karyn » Tue Dec 24, 2013 3:28 pm

Thanks, Violet :P
The following message was included in the most recent IPPS Newsletter:

"Men with Pelvic Pain Find a Path to Treatment Blocked by a Gynecology Board" - Pelvic Pain and IPPS Featured in New York Times Article

The International Pelvic Pain Society was recently featured in an article in the New York Times. The article addresses the recent ruling by the American Board of Obstetrics and Gynecology obstetricians and gynecologists are not allowed to treat men. Violation of the ABOG's recent ruling could cause a doctor to lose his or her board certification.

The IPPS already has worked collaboratively with the ABOG to ensure that NO restriction be put on obstetrician/gynecologists to treat chronic pain patients, which had initially been raised as a restriction. IPPS is grateful that the ABOG was prompt in removing this restriction.

IPPS President Stephanie Prendergast, MPT weighed in on the subject, stating "...these gynecologists are better equipped to treat male patients with pelvic pain than most urologists, neurologists, orthopedists, etc."


Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Re: ON LINE PETITION RE: MALE PATIENTS AND ABOG

Postby Violet M » Tue Dec 24, 2013 4:57 pm

That's great, Karyn! Thanks for the update. :D

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: ON LINE PETITION RE: MALE PATIENTS AND ABOG

Postby janetm2 » Tue Dec 24, 2013 7:03 pm

Excellent news, thanks for letting us know.
2007-08 pelvic muscles spasms (per colon-rectal dr.) treated by ElectroGalvanicStimulis(EGS). 6/27/10 sat too long on a hard chair- spasms, EGS not work Botox help, spine pain dr cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain started/surgery at age 21. TG gave me back enough sitting to keep my job and join in some social activities. I wish the best to everyone!
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Re: ON LINE PETITION RE: MALE PATIENTS AND ABOG

Postby nervyjoe » Sun Jan 05, 2014 12:11 am

Thank you Karyn!! Well done everyone, we got approx 200 signatures on the petition and from my communication with David Margaulis it was evident that it made a difference.

Any chance you can post a link to the newsletter?
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Re: ON LINE PETITION RE: MALE PATIENTS AND ABOG

Postby Karyn » Sun Jan 05, 2014 3:44 pm

You're welcome! :P
Unfortunately, I received a copy of the news letter in a private email. I went to their site: http://pelvicpain.org/index.asp to see if it was posted there, but no. Their latest news letter is dated December 2012. Sorry :(
If anyone wants to send me your private email address via PM, I'd be happy to forward it to you.
Great job with the petition, Joe!!! Thanks so much for taking the initiative to get the ball rolling.
Kind regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Re: ON LINE PETITION RE: MALE PATIENTS AND ABOG

Postby volcanbird » Wed Jan 22, 2014 1:30 am

ABOG has no update to their definition since November 2013. Can't access 2013 IPPS. Can anyone really verify this 12/24/ 2013 update?
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Re: ON LINE PETITION RE: MALE PATIENTS AND ABOG

Postby volcanbird » Wed Jan 22, 2014 11:30 pm

I have just heard from one of the board members of ABOG. He said there is NO CHANGE in ABOG's policy since November. Not sure what IPPS thinks has been negotiated but ABOG knows nothing about it. Only men, who are in current treatment, are allowed to continue seeing OB/GYN. The board member said he would let me know if there is any change. Sorry guys!
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Re: ON LINE PETITION RE: MALE PATIENTS AND ABOG

Postby nervyjoe » Fri Jan 31, 2014 5:07 am

It looks like game over, they have revised the definition for good.

http://www.nytimes.com/2014/01/31/healt ... enisegrady
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Re: ON LINE PETITION RE: MALE PATIENTS AND ABOG

Postby janetm2 » Fri Jan 31, 2014 7:30 am

Thanks for posting their decsion to finally allow the men to get this much needed help.

Maybe one or the moderators can put this on the homepage and make a lasting tinyurl?

Also I was wondering if this can some time in the future get changed back if we should get back to our other petition for trying to get universities and the other doctors that should have been handling this nerve (neurologist, urologists, etc) and even those who should be aware (colon rectal surgeons, GPs, etc) so we can get better help or at least quicker diagnosis.

Janet
2007-08 pelvic muscles spasms (per colon-rectal dr.) treated by ElectroGalvanicStimulis(EGS). 6/27/10 sat too long on a hard chair- spasms, EGS not work Botox help, spine pain dr cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain started/surgery at age 21. TG gave me back enough sitting to keep my job and join in some social activities. I wish the best to everyone!
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Re: ON LINE PETITION RE: MALE PATIENTS AND ABOG

Postby Violet M » Sun Feb 02, 2014 12:31 am

Janet, I updated the homepage at pudendalhope.org (scroll to the bottom) but I don't think I can make the link permanent either for the ABOG website or the NY Times article.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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