Mulan's MRI -help!

Discussion of magnetic resonance imaging and magnetic resonance neurography

Re: Mulan's MRI -help!

Postby AliPasha1 » Fri May 20, 2011 9:34 pm

Ladies,
I don't think that PT is the answer to any PNE surgeries.PT is important after the surgery,but it's just another making a quick back out of desperate patients like us.It comes from a patient who never improved by the so called best in the country such as Amy Stein in NYC,Stephanie and Liz Rummer in SF and Dr. Jerome Weiss.

Regards,
Ali
Last edited by AliPasha1 on Mon May 23, 2011 4:29 am, edited 1 time in total.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
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Re: Mulan's MRI -help!

Postby Mulan » Sat May 21, 2011 4:30 pm

Dr.Potter suggested a block to vulvar area by OBGN, does anyone know where the injection spot will be? I was told it is the same one they give to lady when they deliver the baby. So far, I haven't found anyone to do so.
Thanks, M
Last edited by Mulan on Sat May 21, 2011 4:31 pm, edited 1 time in total.
Symptom started 10/2010,sitting pain started 02/20/11. 1st injection 3/25/11. PT started 03/29/11. 2nd injection august,2011
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Re: Mulan's MRI -help!

Postby donstore » Sun May 22, 2011 6:07 am

I would have to agree with Ali on this PT question. Before surgery it may provide some temporary pain relief but its main value is post-op. If you are entrapped, all the PT in the world won't cure you.
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
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Re: Mulan's MRI -help!

Postby Violet M » Sun May 22, 2011 6:52 am

Mulan wrote:Dr.Potter suggested a block to vulvar area by OBGN, does anyone know where the injection spot will be? I was told it is the same one they give to lady when they deliver the baby. So far, I haven't found anyone to do so.
Thanks, M


Mulan, did Dr. Potter tell you it's the same as a block given to a lady when delivering a baby? If so, it's a pudendal nerve block given at the ischial spine. The Obgyn can feel the ischial spine via the vagina with a finger and give the block that way. It's really an old-fashioned procedure that is rarely done anymore now that epidurals are used during labor and delivery and it's not very precise so I would be surprised if that's what she meant.

The PN docs typically give pudendal nerve blocks at the ischial spine or the alcock's canal but they go through the buttocks, not the vagina, and they use some type of image guidance.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Mulan's MRI -help!

Postby Mulan » Sun May 22, 2011 6:16 pm

Violet M wrote:
Mulan wrote:Dr.Potter suggested a block to vulvar area by OBGN, does anyone know where the injection spot will be? I was told it is the same one they give to lady when they deliver the baby. So far, I haven't found anyone to do so.
Thanks, M


Mulan, did Dr. Potter tell you it's the same as a block given to a lady when delivering a baby? If so, it's a pudendal nerve block given at the ischial spine. The Obgyn can feel the ischial spine via the vagina with a finger and give the block that way. It's really an old-fashioned procedure that is rarely done anymore now that epidurals are used during labor and delivery and it's not very precise so I would be surprised if that's what she meant.

The PN docs typically give pudendal nerve blocks at the ischial spine or the alcock's canal but they go through the buttocks, not the vagina, and they use some type of image guidance.



It is Dr. Dellon who pointed out it is the same one they give to a lady when delivering a baby when I told him that Dr. Potter suggested a block to vulvar branches. It is so confusing. I am going to Dr. Renney next week and will talk to him about it.
Anyway, thank you very much for caring as always, Violet.
Symptom started 10/2010,sitting pain started 02/20/11. 1st injection 3/25/11. PT started 03/29/11. 2nd injection august,2011
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Re: Mulan's MRI -help!

Postby Mod8 » Tue May 24, 2011 10:04 am

I had my pudendal blocks via the vagina.
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Re: Mulan's MRI -help!

Postby Pelvis Stressly » Wed May 25, 2011 8:56 am

nyt wrote:even though on the MRI there appear to be areas without scar tissue there is always the possibility there could be scar tissue that is under the threshold of detection of the MRI.


Just wanted to add that, in addition to the above possibility, we also still don't really know how much of the scar tissue Dr. Potter is turning up is actually problematic (vs. just being harmless 'noise' or artifact).
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Re: Mulan's MRI -help!

Postby Mulan » Sat Jun 23, 2012 5:35 am

I haven't talked with the friends I met here for a long time and I would like to share my story with you and wish my experience could help others as others like you helped me go through the most difficult time of my life.
I think I have had a big improvement!  The primary pain I always complained was gone completely since last August.  The secondary pain lasted for a month and disappeared. The most of symptoms I experienced last year are almost gone. Now, I don't think about it very much.  Occasionally, it bothers me a little bit (discomfortable when I am sitting), but it didn't last long and it is much mild compared to the pain I experienced last year. Last year, even thinking about sitting is scarring for me!  I started to feel the big improvement since this Feb.  Two months ago, I was on a long trip (17 hours flight) and I was fine. Now,  I sit whenever I need to without a cushion except that I sit on a 'GELCO' cushion during 8 hours work.   I feel I have my life back.

I feel it is all due to the FaLun Gong I have practiced since last June because I take no medicine (stopped Lycia last June), no surgery, and no PT (stopped last August) except one nerve block last August.
 
I was inspired to practice FaLun Gong  by this article:
http://en.minghui.org/html/articles/201 ... 26024.html

And I learned that it has helped a lot of people who have disease including cancer and rare disease. I had no hope after I had MRI with Dr. Potter and Dr. Renney told me that the surgery would make my case worse based on my MRI report.  Therefore, I had no choice except that i tried to practice FaLun Gong and I am glad Where i am now after a year of the practice.   It changed my life!
 
Here is the book I have read in case that you would like to read :
http://www.falundafa.org/eng/books.html
 
Here is the video to teach how to practice (exercises 1-5) 
 http://www.falundafa.org/eng/audiovideo.html

Wish you all the best and just let me know if I can provide any help.
Mulan
Symptom started 10/2010,sitting pain started 02/20/11. 1st injection 3/25/11. PT started 03/29/11. 2nd injection august,2011
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Re: Mulan's MRI -help!

Postby nyt » Sat Jun 23, 2012 1:07 pm

I am so happy for you that you have so much improvement! Will do some reading on Falun Dafa as I have never heard of it. Always looking for things to add to my toolbox for pain control.

I am curious. How much of your improvement is due to the nerve block you had in August? Do you think it was a combination of the nerve block settling things down and doing the Falun Dafa?
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Re: Mulan's MRI -help!

Postby helenlegs 11 » Sat Jun 23, 2012 2:09 pm

Fantastic news Mulan!! thanks for such a positive post. will check your suggestions out.
Thanks agin, take care,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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