Is it worth time, expense, & wait to have Potter MRI?

Discussion of magnetic resonance imaging and magnetic resonance neurography

Is it worth time, expense, & wait to have Potter MRI?

Postby tyro » Mon Mar 19, 2012 11:00 pm

I live in WA State near Seattle. They have a 3T machine available for me to use. Is it worth the time, expense, and wait to fly to NY to have a Potter MRI done?

From what I read around here, she is the best at interpreting the results and also has a custom-tailored protocol and software system that others do not have.

Is there anything that she will see that the radiologist in Seattle will not see? Will it be significantly more helpful in the diagnosis of PNE and/or aid in the location of the specific point at which the nerve is trapped?

I'm not trying to cause controversy, but I just want to get the top level care from the start. Cost is no object for me.

Thanks for the help.
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Re: Is it worth time, expense, & wait to have Potter MRI?

Postby hope4eva » Tue Jul 31, 2012 10:09 am

When I made apt there was no wait apt was made in one wk however my insurance will not covet it & at best there is a program that will give a discount rate & cost will b a grand or do I can't afford it but if u can its worth it go for it if u can _
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Re: Is it worth time, expense, & wait to have Potter MRI?

Postby Karyn » Tue Jul 31, 2012 1:03 pm

Hi Tyro,
There are 3T MRI machines scattered across the country. I recently went for one in RI. It was supposed to be for a pelvic neurography, equivalent to a Potter MRI. While they do provide the best pictures, what is most important is the skill level of the person reading the images.
tyro wrote: I just want to get the top level care from the start. Cost is no object for me.

Understandable! I recommend that you don't waste your time/money and get it done right the first time with Dr. Potter.
Kind regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Re: Is it worth time, expense, & wait to have Potter MRI?

Postby Jax87 » Tue Jul 31, 2012 7:43 pm

I agree with Karyn. Everyone I've talked to agrees that her MRI reading is the gold standard. It is worth the effort to have the peace of mind of knowing that you have accurate results. (or as accurate as science currently can offer) I know you said money is no object, but I'll just add that insurance completely covered mine.

Good luck!

Jackie
Started with vulva itching 2/11. Diagnosed as vulvodynia and then PN in 01/12. Progressed to sitting pain and constant burning. Received 4 nerve blocks with only temporary relief, did year of pelvic PT before being diagnosed with bilateral FAI and hip labral tears 7/12. Did orthopedic PT 1.5 years. 3/13 Arthroscopic hip surgery at HSS with Dr. Kelly. Take cymbalta and lyrica daily. About 97% better than worst point thanks to combo of surgery and meds. Yay!
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Re: Is it worth time, expense, & wait to have Potter MRI?

Postby Skylar » Tue Jul 31, 2012 9:05 pm

Hi Tyro, I'd choose the Potter MRI in less than a New York minute!!!! :)
Unilateral pain began in 2009 from fall trauma.
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