Sports hernia surgery resolved pudendal pain

Hysterectomy, Ovary Removal, SIJD, Piriformis Syndrome etc

Sports hernia surgery resolved pudendal pain

Postby PKgal » Mon Jun 05, 2017 2:01 pm

I know everyone's experience is different, but I'm sharing mine in case it helps. I had burning pain in my pelvis and pain with sitting that was constant and horrible and started seemingly out of nowhere, though later I realized I had done some heavy lifting a few weeks prior and at the time felt like I'd pulled something in my lower abdomen, but no pain developed for at least a month after. I was initially diagnosed with pelvic floor dysfunction, but I was dubious because I didn't have any other symptoms (no pain with sex, no continence issues, etc) but when you're in that kind of pain, you do anything that might help! I went for PT, and in evaluation they identified pudendal nerve pain. I had PT, shots, medication - I think a lot of it made me feel worse. Though I'm still glad I did PT because my therapist was a great coach and helped me stay sane and hopeful! My MRI of the pudendal nerve was normal, but my gyno said damage doesn't always show on MRIs, but my symptoms matched and she also did diagnose me with pudendal neuralgia. But she said if I saw no progress with PT, shots and meds after a time I should go see a surgeon for evaluation for pubalgia ("sports hernia"), though she didn't think I had it. I looked it up on-line and it ALSO didn't sound like me, except for a couple of random sites that listed different symptoms than most did. But I learned that there's not a lot of good info out there about pubalgia and that it often presents differently in men vs. women and most info out there is about the presentation in men, for whatever reason (I'm a woman). Even the surgeon said I was a borderline case, but I had the surgery, and the amazing thing is that while it's not done near the pudendal nerve, in some way it restores balance to the region, and I now have 0% sitting pain!! I still have some front pelvic pain, almost 4 months post-surgery, but it's so much less than it used to be, and it's very gradually continuing to improve so far, so I'm praying and keeping fingers crossed that it might get even better. If anyone looks it up and thinks it might fit them (or if you had symptoms like mine - burning pelvic pain, rear pain that is much worse when sitting down, and even lying down, pain worse with walking much or even the motion of leg movement for driving, pain not worsened by sex - these were my symptoms, but if yours are a little different, I still wouldn't necessarily rule it out) then I'd highly recommend my surgeon, Dr. Mark Zoland, in NYC. Wonderful person and excellent surgeon. I know how exhausting it is to look into option after option, so I don't mean to stress anyone out by adding another thing to look into, but I also know how important it is to keep looking for the RIGHT diagnosis, and how hard that is, as there's not enough known yet generally in medicine about this area!
PKgal
 
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Re: Sports hernia surgery resolved pudendal pain

Postby Buttercup28 » Mon Jun 05, 2017 5:19 pm

Hi PKGal,

Thanks so much for posting. I just joined this forum a few months ago in order to try and figure out if I could gather any helpful information from others on here. I have had the PN pain for 9 years. I just recently found out last year that I have a hip issue (impingement and labral tear) that could be the cause of and/or contributing to my long-standing pain issues.

In any case, I decided just recently to look into the hernia aspect because it came up as a recommended route I should take to determine if there is any connection. I honestly didn't think I had any kind of hernia b/c I figured I would know if I had a hernia all of these years. (And of course being a woman, I though well men have hernias, and also I don't have any preceding causal event to tie it to.)

I just saw Dr. Zoland myself recently for a consult and he did diagnose me with a hernia. I think he mentioned that I have two small chronic hernias (in two different spots), but both on the same side as my PN/pelvic floor pain. I need to review his notes though to see exactly what he told me b/c I was in a bit of a daze when I was there.

He didn't necessarily recommend surgery for me just b/c of my history with PN, hip issues, etc. and he didn't want to give me false hope. I need to give this all some more thought. Thanks so much for your input on here because you are definitely helping!

I'm really happy to hear that you are feeling better already from the surgery! :)

Thanks,

Buttercup
Sudden pelvic pain onset that landed me in the ER 2x -- diagnosed with severe pelvic floor dysfunction and suspected IC. Diagnosed with pudendal neuralgia via MRI and EMG and hip impingement/labral tear on CTscan. Ran the gamut with tests, treatments, procedures, injections, drugs, etc. since then. Still on the quest for answers....
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Re: Sports hernia surgery resolved pudendal pain

Postby PKgal » Mon Jun 05, 2017 7:05 pm

Thank you, Buttercup! I live in awe of people who have been managing pelvic pain for years - I feel like you deserve some kind of medal, or badge, or something! It sounds like there are multiple issues that may affect your pain, but for whatever it's worth, I will mention that my physical therapist told me that another patient of hers who had the surgery with Dr. Zoland and did well with it also had a labral tear and hip issues. That wasn't part of my situation so I don't know how that all may tie together... and if Dr. Zoland said you had 2 hernias, I don't know if that means more the traditional kind of hernia, and therefore maybe a different kind of surgery indicated (if any) than what Dr. Zoland usually does... I don't know, but I definitely DO know what you mean about leaving the office in a daze! Very good to refer to your notes, and also I found Dr. Zoland to be very accessible and patient with follow-up questions, explaining things multiple times to me as I tried to understand this injury and what his surgery is designed to do. I wish you the best of luck!!
PKgal
 
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Re: Sports hernia surgery resolved pudendal pain

Postby mary jane » Wed Jun 07, 2017 8:01 pm

Glad you recovered. I don't know how a doctor can diagnose someone with pudendal neuralgia if their patient says the onset of symptoms was linked to heavy lifting. I'm trusting doctors less and less these days.
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
mary jane
 
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