Fact Sheet Hand Out for Medical Professionals

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Re: Fact Sheet Hand Out for Medical Professionals

Postby catherine a » Tue May 03, 2011 11:26 pm

Violet, the fact sheets don't exist any more. Where can I find the new version?

Catherine
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
catherine a
 
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Re: Fact Sheet Hand Out for Medical Professionals

Postby Lernica » Wed May 04, 2011 1:29 am

That's curious! I downloaded them just the other day.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Lernica
 
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Re: Fact Sheet Hand Out for Medical Professionals

Postby catherine a » Thu May 05, 2011 7:27 am

Sorry Violet, must have been a glitch in my computer. I'm using my laptop today and it opened fine.

Catherine
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
catherine a
 
Posts: 291
Joined: Sat Sep 18, 2010 4:46 am
Location: Perth Western Australia

Re: Fact Sheet Hand Out for Medical Professionals

Postby Lernica » Wed Aug 24, 2011 1:39 am

Hi folks,

I'm preparing an application for disability and would like to include (for the insurer's convenience) all the articles listed at the bottom of this handout. But when I look under Doc's Publications we have only two of the five articles posted there -- Labat's paper on the Nantes Diagnostic Criteria and Hibner's 2010 paper. Does anyone know where can I find the other articles?

Thanks. I'll be posting an update on my situation shortly.

All the best,

Lernica
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Lernica
 
Posts: 967
Joined: Fri Jan 14, 2011 10:31 pm

Re: Fact Sheet Hand Out for Medical Professionals

Postby Lernica » Wed Aug 24, 2011 4:29 pm

Anyone????
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Lernica
 
Posts: 967
Joined: Fri Jan 14, 2011 10:31 pm

Re: Fact Sheet Hand Out for Medical Professionals

Postby janetm2 » Wed Aug 24, 2011 6:21 pm

Lernica,
There are two other sites you can check to see if tgey have the publications:
spuninfo
Www.pudendal.com

The spuninfo has a resourses section that has publications. Hope this helps if you do not hear from someone about the listings for this site.

Good luck with the disability submission.
Janet
2007-08 pelvic muscles spasms (per colon-rectal dr.) treated by ElectroGalvanicStimulis(EGS). 6/27/10 sat too long on a hard chair- spasms, EGS not work Botox help, spine pain dr cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain started/surgery at age 21. TG gave me back enough sitting to keep my job and join in some social activities. I wish the best to everyone!
janetm2
 
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Re: Fact Sheet Hand Out for Medical Professionals

Postby Violet M » Thu Aug 25, 2011 4:59 am

PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Violet M
 
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Re: Fact Sheet Hand Out for Medical Professionals

Postby Lernica » Thu Aug 25, 2011 4:33 pm

Thanks Violet! It might be helpful to post these on our collection of Doc Publications, no?
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Lernica
 
Posts: 967
Joined: Fri Jan 14, 2011 10:31 pm

Re: Fact Sheet Hand Out for Medical Professionals

Postby Violet M » Fri Aug 26, 2011 3:34 am

They are already there. You can go to this link: http://pudendalhope.org/node/25 or you can go to the home page and click on "See docs Publications". You will have to scroll down to find them and then click on the article you want.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
Violet M
 
Posts: 5464
Joined: Mon Sep 06, 2010 6:04 am
Location: United States

Re: Fact Sheet Hand Out for Medical Professionals

Postby donstore » Fri Aug 26, 2011 9:12 am

Lernica,
Good luck with your disability application. Let us know how it goes.

Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
donstore
 
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Location: San Francisco

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