I think i have PN

[Positivepoppy]

Hi firstly wow you must be beyond relieved on your good news! My heart goes out to you , you must have gone through hell. Immhappy to answer any questions as if it wasn't for this forum and others like it I'd still be in chronic pain being passed from specialist to specialist and constantly told I was a mystery and a puzzle. Through extensive internet research I educated myself and my GP regarding this awful condition. I was very fortunate as I had private medical insurance and was covered for everything. I estimate that with consulant fees, nerve blocks, surgery and hospital stay it cost approx £4500. I saw the consultant Mr Greenslade in spire Bristol he diagnosed bilateral nerve entrapment nov 2013. His partner Mr Wong performed bilateral pudendal nerve decompression surgery jan 2014. I'm in recovery but for me I felt surgery was my best option and after surgery mr wong confirmed both sides were in a mess.
How are you coping?? What are your next steps and plan of action?
More than happy to answer any questions and you sincere best wishes for your health and happiness

[mewsage]

I am having pelvic MRI 18th march, gynae appointment after that. If nothing found then I will probably try to see the same doctors you saw because they come to the spire Cardiff.. Thank you for replying xx

[Positivepoppy]

The very best of luck. I saw mr Wong in spire Cardiff he does a sat clinic. To my knowledge mr Greenslade is just Bristol based and he is the one that will test and diagnose PN if he thinks that s what it is. Mr Wong will only give a provisional diagnosis then refer you to mr Greenslade so probably best to see him first. I had an MRI aug 2013 ,2mnths after hysterectomy and PN could not be detected.,I was diagnosed using Nantes criteria, systems, CT guided nerve blocks and high quality ultra sound. Good luck I really hope you get some answers

[chrissy]

Hi your symptoms are almost identical to mine. I am 34 and my pain started after severe bladder distension after childbirth. Anyway I have or have had all your symptoms but mine started in the vagina and then went to pain on sitting but like you say worse when you go from sitting to standing feels like a broken tailbone!
I have been told mine is neuralgia caused by muscles and swelling impinging on the nerve. The swelling is around hips and sacroiliac joint and is caused by pelvis being unstable. The muscles impinge as they spasm as a result of the pain I have been in. It's a vicious circle.
I plan on trying to recover through PT and lifestyle adaptions for six months then assess what to do next!

[mewsage]

It's odd because I don't remember anything happening to start this. I one cannot put any weight through my right leg, the S1 nerve is so inflamed I cannot turn my right foot inwards as the pain is like a tearing burning pain. This seems never ending. Chin up though worse conditions to have xx keep in touch xx