Pudendal neuralgia after hysterectomy and repair ?

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Pudendal neuralgia after hysterectomy and repair ?

Postby Wmcconnell » Sat May 28, 2016 6:45 pm

Am a total newbie to this site. Not even sure if i am posting this in the right place. About 16 months ago i had a vaginal hysterectomy and a repair, due to a prolapse. After a whole lot of pain a second prolapse was discovered so underwent a second repair. Sadly the pain has never left me. The dr's and gynecologists don't know what to do with me. I have now been referred to a specialist in Oxford, just waiting on an appointment . There is a long waiting list, so i am told. I have pain on sitting, slightly less on standing. Severe pain after passing stools and driving is impossible (why is this?) The pain levels increase as the day goes on and by the evening i am a quivering wreck. :? I have just had to shorten my working hours as working as a teaching assistant for the whole day was proving impossible. I have had days when i fear i am going mad, as explaining the pain is so hard. Would really love to hear from someone who is experiencing the same thing after surgery. Looking through information it looks like this is going to be a long journey ...
wendy
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Re: Pudendal neuralgia after hysterectomy and repair ?

Postby April » Sat May 28, 2016 10:29 pm

Welcome to forum, wmconnell. The pain sounds really difficult, and it is so hard to cope with this problem when it interferes with work. My pn did not develop through surgery, but I have read many entries from others whose pn started that way. Could you see a pelvic pain physical therapist while you are waiting to see the specialist? Perhaps the original doctor you saw could give you a referral?

Those on the forum who have pain in the rectum and pain with stools use stool softeners to reduce the pain. You may be able to find a thread or two on that if you put related terms in the search box above.

April
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Re: Pudendal neuralgia after hysterectomy and repair ?

Postby survivor71 » Sun Jun 05, 2016 2:21 am

I am new to this is this site. I dont know how to start a new topic. You see I have a bladder sling 1st mistake. For 9 months have been in severe pain in vagina lower bk like knives are stbbing in my vagina when i sit for a long time or stand. I have no life, I also have pain in pelvic area no sex. cant do it. i am married I am in a emotion and phyaical better within my self. Where do i post all this and more to get suggestion. i am 90 percent sure it is from the sling and the hysterectomy i had. bk in 2012.
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Re: Pudendal neuralgia after hysterectomy and repair ?

Postby janetm2 » Sun Jun 05, 2016 3:42 pm

Survivor,
If you go to the board index and then welcome center there is a new topic button. Sorry you are having a hard time. Post your story and questions so we can try to help. I know others have issues with bladder slings, etc.
Janet
2007-08 pelvic muscles spasms (per colon-rectal dr.) treated by ElectroGalvanicStimulis(EGS). 6/27/10 sat too long on a hard chair- spasms, EGS not work Botox help, spine pain dr cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain started/surgery at age 21. TG gave me back enough sitting to keep my job and join in some social activities. I wish the best to everyone!
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Re: Pudendal neuralgia after hysterectomy and repair ?

Postby Violet M » Fri Jun 17, 2016 4:14 am

Wendy, you might find it helpful to read Amanda's story at the following links, including her forum signature.
http://www.pudendalhope.info/node/67
viewtopic.php?f=33&t=73&p=325#p325
She is from the UK and might have some helpful information for you if you want to send her a private message.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: Pudendal neuralgia after hysterectomy and repair ?

Postby peg » Thu Jan 26, 2017 3:42 am

W McConnell,
My name is Peggy Rogers. I have lived with chronic neuropathic pelvic pain for the past 20 years. I developed pudendal neuropathy after a vaginal hysterectomy due to a vaginal cuff cuff abscess. I've tried everything from surgery, medications, nerve blocks, injections, neurostimulators, nerve blocks, cryosurgery, radio frequency, & intrathecal pump. On 1/18/2017, I received a stem cell paste injection into my damaged/ irritated pudendal nerve. This stem cell paste injection contains a very high concentration of stem cells. The stem cells will expand to 4cm at the injection site. The stem cells will stay at that site for 2years. The stem cells will be healing and combating inflammation/ pain. As of today i havent felt any burning pelvic pain since the injection. I only feel pressure, tingling, & mild pelvic spasms. Which i was told is normal after the injection. My physician is Dr. Todd Malan of Scottsdale, Arizona. Dr. Malan told me that this stem cell paste injection can also be injected into any joint/disc. Even if there is no cartilage in the joint. The stem cells will grow new cartilage for that joint. Dr. Malan travels worldwide teaching other physicians about stem cell therapy. If you would like more information about the stem cell paste injection, please send me a message. Take care.
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