Hello,
I have suffered with pudendal neuralgia for 20 years now. i last saw a specialist in around 2015 and wonder if i should try again to find help? Have there been any break-throughs in the last 10 years?!
Has anyone seen a doctor in London recently? I saw Dr Baranowski on my last appointment and wonder if he is still the best person to approach? I saw him at UCLH. Is he still there these days?
Thanks for any ideas.
Holly
Who to see in London?
Re: Who to see in London?
Sorry, I don't know anyone other than Dr. Baranowski in London.
This is the latest info we have for him:
National Hospital for Neurology and Neurosurgery
Queen Square, London WC1N 3BG
Phone: 020 7837 3611
He is still listed as working there:
https://www.uclh.nhs.uk/our-services/fi ... baranowski
You could check with some of the PT's to see if they know of any other specialists. https://www.pudendalhope.info/european- ... nd-ireland
This is the latest info we have for him:
National Hospital for Neurology and Neurosurgery
Queen Square, London WC1N 3BG
Phone: 020 7837 3611
He is still listed as working there:
https://www.uclh.nhs.uk/our-services/fi ... baranowski
You could check with some of the PT's to see if they know of any other specialists. https://www.pudendalhope.info/european- ... nd-ireland
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Who to see in London?
Thank you, Violet.
I do wonder how much Dr Baranowski practices these days. My digging around on the internet suggests he is a lot less accessible than he used to be. His own website no longer exists, he doesn't have any private clinics as far as i can see and when i emailed his NHS secretary it bounced back as undeliverable!
The London Pain Clinic might be worth adding to your list though as Dr Chris Jenner seems to get some good publicity?
The pain team at the National Hospital for Neurology and Neurosurgery is excellent I am sure but i don't know if one can build a relationship with one doctor. You might just see whoever is on the rota that day? If anyone has any recent experience of going there, it would be useful to know how it works.
I will ask around the PT's too - good call.
All the best,
Holly
I do wonder how much Dr Baranowski practices these days. My digging around on the internet suggests he is a lot less accessible than he used to be. His own website no longer exists, he doesn't have any private clinics as far as i can see and when i emailed his NHS secretary it bounced back as undeliverable!
The London Pain Clinic might be worth adding to your list though as Dr Chris Jenner seems to get some good publicity?
The pain team at the National Hospital for Neurology and Neurosurgery is excellent I am sure but i don't know if one can build a relationship with one doctor. You might just see whoever is on the rota that day? If anyone has any recent experience of going there, it would be useful to know how it works.
I will ask around the PT's too - good call.
All the best,
Holly
Re: Who to see in London?
Thanks, Holly. It sounds like you have done a bunch of research already. Wishing you the best in finding someone who can help you.
In order to add a physician to our list we would need their permission. They can contact us via our contact form that can be accessed from the homepage at pudendalhope.org.
Violet
In order to add a physician to our list we would need their permission. They can contact us via our contact form that can be accessed from the homepage at pudendalhope.org.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.