Hi Lelej,
It's great that those shots reduced your burning pain. What was in the shots? If it is, in part, a steroid, that schedule (7-10 shots, 3 per week) is much higher than they would do in the U.S. I think they limit steroid shots to three per year and, I think they recommend separating the shots by at least a month. (I did three steroid shots for my back years ago, and I think those were the parameters). Good luck with your efforts to contact the French doctors. Hopefully, you will get appointments that span more than two days so you can get a longer visa!
April
Leviator ani syndrome or pudendal neuralgia or just Coccydy?
Re: Leviator ani syndrome or pudendal neuralgia or just Cocc
Hi April l,
I really hope you are doing well dear! Thank you and no there is no steroid there.. he said he mixes 5 ingredients that can relieve mild entrapments but he refused to tell me the ingredients ( doctors are not obligated to list the ingredients of the procedures in my country) m. I think it is his own researched ingreadiants but assured me there is no steroids .. he is a very good and kind doctor not looking for money at all like most doctors... I know it is silly I don’t know what I am being injected with but my PN is improving so I really don’t care.. am not by anyway painfree but much better than before.. I am getting closer to the 10th shot and I am not pain free so I am so scared that it might not work for me and that I will need surgery after all. I am so scared of surgery because am not sure I don’t have si-joint dysfunction.. so if I had si-joint dysfunction and did the surgery I will be left with worse pain ...
Lelej
I really hope you are doing well dear! Thank you and no there is no steroid there.. he said he mixes 5 ingredients that can relieve mild entrapments but he refused to tell me the ingredients ( doctors are not obligated to list the ingredients of the procedures in my country) m. I think it is his own researched ingreadiants but assured me there is no steroids .. he is a very good and kind doctor not looking for money at all like most doctors... I know it is silly I don’t know what I am being injected with but my PN is improving so I really don’t care.. am not by anyway painfree but much better than before.. I am getting closer to the 10th shot and I am not pain free so I am so scared that it might not work for me and that I will need surgery after all. I am so scared of surgery because am not sure I don’t have si-joint dysfunction.. so if I had si-joint dysfunction and did the surgery I will be left with worse pain ...
Lelej
Re: Leviator ani syndrome or pudendal neuralgia or just Cocc
Hi Lelej,
I had SI joint dysfunction and surgery helped me so I don't think SI joint dysfunction is a contraindication for surgery. You may just want to research the different surgical approaches and consider which one would be best for you if you end up needing surgery.
Violet
I had SI joint dysfunction and surgery helped me so I don't think SI joint dysfunction is a contraindication for surgery. You may just want to research the different surgical approaches and consider which one would be best for you if you end up needing surgery.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Leviator ani syndrome or pudendal neuralgia or just Cocc
Hi Lelej,
Oh, that's good that there isn't a steroid in there. Yes, if it is working, then it makes sense to continue. Have you completed the ten shots now? How are you feeling?
April
Oh, that's good that there isn't a steroid in there. Yes, if it is working, then it makes sense to continue. Have you completed the ten shots now? How are you feeling?
April
-
AhmedRamadan
- Posts: 3
- Joined: Tue Apr 16, 2024 2:06 am
Re: Leviator ani syndrome or pudendal neuralgia or just Coccydy?
Hi lelej,
I'm Egyptian as well! Violet recommend Dr. Ismail Shafei for me in an another thread so it's great seeing here someone who actually went for treatment with him in person. I see you haven't posted for almost 4-5 years now so I hope his treatment served you well. Appreciate sharing an update on your case.
Below is case 27 yo male
It all started in Nov '23 with severe burning sensation in my pelvic floor (testicles, scrotum, and penis) which used to spread to my inner thighs, lower back, and weirdly enough my arms & shoulder locks. Burning / pain worked more as cycles when off pain was only in my pelvic floor and bearable. Post going to 4 urologists, I was diagnosed with prostatitis although I'm still 27 yo till one day in Dec unbearable pain was felt in my buttocks feeling like hemorrhoids and sitting / sleeping on my back became no longer an option. At that point, I already did pelvic & testicle sonars, semen, urine, urice acid, blood picture tests which came out super normal needless to mention the amount antibiotics I kept taking and injections till early Feb with zero impact.
At this point my urologist recommend a pain specialist for me who asked for both lumbosacral plexus and prostate MRIs. Prostate was fully healthy ... while the other mri showed that my Ieft pudental nerve was swollen which might be due to my intense crossfit lifting. Following that, I had a nerve block injected with cortisone & lidocaine but sadly it failed... turning into a real frustration then I went to 2 neurologists who recommended a urologist knowledgeable with pudental neuralgia. This guy prescribed gabapentin and a supplement for me and I started feeling 20 to 30% progress for over a month but things suddenly got harsh again over the last week after traveling by car 2 consecutive days going back to point zeros and meds are doing nothing.
I'm now confused whether to go for another block with a different pain specialist with some PT sessions or go back to my current urologist. I went to a new neurologist last Tuesday, he prescribed cortisone for 2 weeks along with tegretol and thiotacid it is a trial thing and if it doesn't work he told then to go for Dr. SHAFEI
At this stage, I think I became mentally stronger but I just want to go back to my normal life.
Appreciate your support.
I'm Egyptian as well! Violet recommend Dr. Ismail Shafei for me in an another thread so it's great seeing here someone who actually went for treatment with him in person. I see you haven't posted for almost 4-5 years now so I hope his treatment served you well. Appreciate sharing an update on your case.
Below is case 27 yo male
It all started in Nov '23 with severe burning sensation in my pelvic floor (testicles, scrotum, and penis) which used to spread to my inner thighs, lower back, and weirdly enough my arms & shoulder locks. Burning / pain worked more as cycles when off pain was only in my pelvic floor and bearable. Post going to 4 urologists, I was diagnosed with prostatitis although I'm still 27 yo till one day in Dec unbearable pain was felt in my buttocks feeling like hemorrhoids and sitting / sleeping on my back became no longer an option. At that point, I already did pelvic & testicle sonars, semen, urine, urice acid, blood picture tests which came out super normal needless to mention the amount antibiotics I kept taking and injections till early Feb with zero impact.
At this point my urologist recommend a pain specialist for me who asked for both lumbosacral plexus and prostate MRIs. Prostate was fully healthy ... while the other mri showed that my Ieft pudental nerve was swollen which might be due to my intense crossfit lifting. Following that, I had a nerve block injected with cortisone & lidocaine but sadly it failed... turning into a real frustration then I went to 2 neurologists who recommended a urologist knowledgeable with pudental neuralgia. This guy prescribed gabapentin and a supplement for me and I started feeling 20 to 30% progress for over a month but things suddenly got harsh again over the last week after traveling by car 2 consecutive days going back to point zeros and meds are doing nothing.
I'm now confused whether to go for another block with a different pain specialist with some PT sessions or go back to my current urologist. I went to a new neurologist last Tuesday, he prescribed cortisone for 2 weeks along with tegretol and thiotacid it is a trial thing and if it doesn't work he told then to go for Dr. SHAFEI
At this stage, I think I became mentally stronger but I just want to go back to my normal life.
Appreciate your support.