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Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Tue Jul 03, 2012 12:30 am
by helenlegs 11
Well done Movin, good for you
Take care,
Helen
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Wed Jul 04, 2012 3:06 am
by Violet M
Movin, I posted a link to this on the homepage. Thanks for all you are doing!
Violet
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Mon Sep 16, 2013 7:13 pm
by MovinCA
Hi All,
Fundraising and creating awareness have been on my mind again lately. Not sure if I plan to walk in another 5K, or what to do quite yet, but wanted to see if anyone else has the desire to create a fundraiser. May 1st is now standing out in my mind since that is now our day for awareness. Speaking of which, do we have a color, ribbons, etc.? I haven't been on in awhile to see if anything had come of that.
Here are some inspirations that I found (other fundraisers, inspirational blogs, websites that made me think, etc.)
This One is for RSD...another syndrome (is PN/PNE a syndrome?) affecting the nerves...
http://www.quenchthefirerun.org/rsd-chr ... formation/
What a story...
http://www.gofundme.com/help-lisa-fight-pn
One of my favorite blogs...
http://pudendalpain.blogspot.com/
What? There's help in organizing an event? Wonder what that costs? (I haven't looked at it yet.)
http://w2promotions.com/public/start.php
Razoo has HOPE in their database already...create your own fundraiser and the money gets sent to HOPE (Razoo takes a tiny portion to maintain their company...but they are a nonprofit as well...and they're awesome!)
www.razoo.com
A little inspiration for all of you out there. Never give up!
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Mon Sep 16, 2013 10:38 pm
by MovinCA
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Tue Sep 17, 2013 4:54 am
by Violet M
Hey, welcome back, Movin'.
How are you these days?
Would love to work on some type of fundraising with you although at the moment I'm working on several other things for HOPE from behind the scenes that I need to complete before taking on something else. I think if anyone wants to do a fundraiser that would be awesome!
Violet
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Tue Sep 17, 2013 5:59 pm
by MovinCA
Hi Violet!
Great to hear from you! Things are going well. I'm trying to balance keeping up with my PT exercises and my 9 month old. I feel very fortunate. Had a pretty bad flare recently, but never give up hope.
I'm going to be walking in a 5k for RSD for my cousin in December, and they have some really simple fundraising software that I may switch over to. Maybe I can actually organize an event. It sounds daunting, but with the experience I've gained, it may just be possible.
For those out there looking to start a fundraiser, I still recommend
www.razoo.com, but
www.activegiving.com seems to be another good one. Of course, get your approvals from the HOPE board, first!!!
Don't be afraid if you're thinking about a fundraiser. Feel free to send me a message and I'll be happy to help you make it approachable (although I may not respond to messages immediately. I work part time and have a 9 month old--yikes!). Small scale stuff works out really well. You can do something small, but advertise it on the web to a large audience...and then you've done something BIG!
Let's raise awareness!
Re: Creating Massive Pelvic Pain Awareness Campaign
Posted: Tue Sep 17, 2013 6:27 pm
by MovinCA
Sorry for all of the posts, but now I'm getting really excited. Fundraising software has come a long way in the past few years!
I'm going to do more investigating, but this sounds great so far...and free!
http://www.activegiving.com/technology- ... aising.htm