Hi I am a regular member of this website and forum, but I am also a regular member on two Facebook support groups for both men and women with Pudendal Neuralgia and Pudendal Nerve Entrapment. If you would like additional support and the ability to chat online instantly, you may also want to check out these two groups. The link to the first Facebook group is called Pudendal Neuralgia Support at http://www.facebook.com/groups/28167824 ... p_activity and the second one is called Pudendal Nerve Entrapment Pudendal Neuralgia Nonbacterial Prostatitis Group at http://www.facebook.com/groups/28167824 ... 593083615/ They both have patients with PNE on them. I run the second one called Pudendal Nerve Entrapment Pudendal Neuralgia Nonbacterial Prostatitis Group, but I am also on the first one a lot. A lot of the people on these groups are also on pudendalhope.com, but just wanted to share this with you all. Not everybody may like to join this group on Facebook, but it is a closed group, meaning, that not everyone can view it and they must request permission to join the group and they can be taken off the group at the administrators discretion. Again, this is not something everybody has to do, but if somebody is okay with the chance of other's possibly discovering their identity from Facebook as I am, then they can choose to. It is really a personal decision, but everybody should be aware that this is a closed group and you must request permission to join the group. You could also choose to make up a fake name on Facebook and then join the group if you somebody is concerned about someone discovering their identity. Everybody should understand the risks when you post any personal information anywhere on the internet and use their discretion.
ShawnThanks
Shawn
2 Facebook Instant Chat Groups for Pudendal Nerve Entrapment
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shawnmellis
- Posts: 227
- Joined: Sat Dec 04, 2010 8:42 pm
- Location: Concord, NC USA
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2 Facebook Instant Chat Groups for Pudendal Nerve Entrapment
Bringing Help Awareness Education to Patients & Doctors about PNE through Videos at http://www.YouTube.com/PudendalNerve & PudendalHope.com Please tell Dr. Oz to cover topic of PNE by going to http://www.doctoroz.com/contact Started 1/2010. Initial urinary tract infection in 1/2010. Medication: Diazepam, Tramadol. 4 nerve blocks. physical reinjury 8/2010. 7/2011 Potter MRI Varices dorsal branch 8/23/11 Diagnosis Entrapment of Dorsal Branch Dr. Lee Dellon There's Always Hope!
Re: 2 Facebook Instant Chat Groups for Pudendal Nerve Entrap
Hey Shawn I think you've just posted this in the Welcome section as well?
By the way, you won't see me on Facebook, I don't like their data mining. ( Edited to add - just put me down as a technological dinosaur, and probably a paranoid one as well.
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By the way, you won't see me on Facebook, I don't like their data mining. ( Edited to add - just put me down as a technological dinosaur, and probably a paranoid one as well.
)Re: 2 Facebook Instant Chat Groups for Pudendal Nerve Entrap
I'm So Happy I logged on here today. I'm slipping backwards in my progress & to see 2 Facebook groups to join is Fantastic!! I asked both groups to be a member.
Thank you So Very Much for making us aware of this.
Jett
Thank you So Very Much for making us aware of this.
Jett