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Farewell to Tipna (www.tipna.org) party, Feb 4

Posted: Wed Jan 30, 2013 6:25 am
by GregT
Hey, this is Greg Thibeaux from http://www.tipna.org. Tipna stands for The International Pudendal Neuropathy Association and many of you may have been members of the website at some point in time. Anyway, we're no longer going to be on the internet any more because there is another PN website that is doing a great job and there no longer is a reason for us to be in existence. By the way, their website is http://www.pudendalhope.org. (This is the PM that I sent to most of our members)

As a way of celebrating what we've accomplished over the years and to just have one last get together, we're going to be getting together on February 4, 2013 (maybe for most of the day, time frame not yet established). If you want to be able to join but you don't remember your screen name or password, then send me back a PM (or send an email to admin@tipna.org) and I'll help you to get your screen name and password (which I may have to reset) so that you can participate.

Please get in touch with me as soon as possible if you'll need me to help you with your screen name or password. Everyone is welcome.

Greg

Re: Farewell to Tipna (www.tipna.org) party, Feb 4

Posted: Wed Jan 30, 2013 3:15 pm
by Karyn
Hi Greg,
Thanks so much for extending the invite! I hope to be able to attend.
Also, thank you for all of the hard work and support you've provided over the years to people seeking direction and comfort. Your efforts in this area have been truly valiant and commendable.
Kindest of regards,
Karyn

Re: Farewell to Tipna (www.tipna.org) party, Feb 4

Posted: Thu Jan 31, 2013 2:55 am
by catherine a
Thank you Greg for initiating TIPNA. Without the support and information I found on TIPNA I wouldn't be where I am today. 8 years on I do have my life back. Some pain still exists but not to the extent I had when I frantically surfed the net and found others who were suffering the same fate when I thought I was the only one. Many doors have opened since and it's great to see more and more health care professionals take this on board.

Without TIPNA we wouldn't have HOPE. We have struggled together and suffered together through these long years. I often think of those who suffered in the past before the internet existed. Years ago we would've been locked up.

Catherine A

Re: Farewell to Tipna (www.tipna.org) party, Feb 4

Posted: Fri Feb 01, 2013 2:23 am
by LottaNerve
Greg, I'm so glad I checked in and saw your post. I haven't been online for quite a while so it was fortunate timing. I am grateful to TIPNA for being there when I had nowhere else to go. I have made many friends between TIPNA and pudendalhope. I will plan on checking in on Feb. 4! Thank you so much.

Re: Farewell to Tipna (www.tipna.org) party, Feb 4

Posted: Fri Feb 01, 2013 4:25 pm
by GregT
Hey, Lotta, Catherine and Karyn! Glad to "see" you all. I hope that some of you can make it for the 4th. Thanks to you for the kind comments above. I'm hoping we can all have a nice time on tipna before it ends. Many of the past PN websites have ended under bad terms for various reasons, but we've managed to stem the tide. I thought it would be nice to have one last time to all get together one more time. I'll see you then.

Greg

Re: Farewell to Tipna (www.tipna.org) party, Feb 4

Posted: Sat Feb 02, 2013 5:35 am
by Violet M
Hey Greg,

I'm planning to check in on the 4th. Tipna was one of my lifelines during my darkest PNE days. Thanks for all you've done for the PNE community over the years.

Best,

Violet

Re: Farewell to Tipna (www.tipna.org) party, Feb 4

Posted: Sat Feb 02, 2013 7:53 am
by donstore
Thank you, Greg.

Re: Farewell to Tipna (www.tipna.org) party, Feb 4

Posted: Wed Feb 06, 2013 11:00 am
by helenlegs 11
Thanks from me too Greg. I wasn't able to be 'at' the party (sorry) but just had to say that people like you and places like TIPNA have been fundamentally instrumental in allowing this damned PN problem to become better recognised. You should be justly proud.
Cheers mate :) ,
Helen

Re: Farewell to Tipna (www.tipna.org) party, Feb 4

Posted: Wed Jun 26, 2013 3:16 am
by JODDY47
Thanks Greg!