Health Organization for Pudendal Education

There are 7 Directors of HOPE

I would like to introduce myself to you all.
My name is Amanda, I am Irish, a 47 years old mother of two daughters and divorced.
My history with PN began with a Hysterectomy in 2003, which lead to many procedures spreading over many years; you can read my full story here in this link:
http://www.pudendalhope.org/node/67

I have been a very active member on many websites having also moderated and administrated on them for several years.
Many of you will know me but I wanted to make this introduction for those who are new to our forum; I just would like you to get to know me a little more and feel confident that you have dedicated people working to create this forum and organisation.

Hi all,

I will follow this good example here.

I'm Kris.. I know the most fora for 6 years now .I worked with this crew for more as a year now ..
My personal full story(up till now ) is here : http://www.pudendalhope.info/node/70

I also like to welcome you here .
It has been very difficult weeks for allot of us -- including me ..
But I'm glad we did build a place of our own organisation . A place where people that help the most ...decide the most .
I think that together with you all we make this the best PNE forum on earth !

Hi Everyone,

My name is Violet and I have been a member of the PN community since March or 2004. You can read my story here:

http://pudendalhope.org/node/65

I am married with two handsome wonderful sons and I live in the southwestern USA. Five years after my PNE surgery I was able to return to work and I have a great job that I love.

PNE changed my life forever. Even though I am no longer in severe pain, I will never forget what it was like during the lowest part of my life and that is why I continue to be here to try to give support to all of you who are still suffering. I am here to give a shoulder to lean on and to say my 2 cents now and then about PN and all related topics.

I am committed to pudendalhope.org and HOPE because I believe that as a charitable non-profit organization, we will be better able to further the PNE cause. Please feel free to give suggestions or ideas to the directors of the organization. We welcome your input.

Hi all and welcome.
As a director of HOPE I welcome everyone to our new website. My PN journey started in 2004 following a vaginal hysterectomy and pelvic floor repair. (A & P repair) without these dedicated and valued members of the PN community my life would not be where it is today. I live in Australia and with the support of the PN community have been instrumental in bringing knowledge of Pudendal Neuralgia to the medical profession as well as the general community here in Australia.

The first two doctors in Australia to believe that I had PNE were Prof. Thierry Vancaillie (NSW) and Dr. Tim Pavy (WA) After traveling to France to consult with DR. Eric Bautrant I am now 3 years post op from the TIR approach to release a severely trapped pudendal nerve. My story can be read under personal stories. I am by no means cured but I have my life back, am back at work and can travel without too much stress. Our journey is a long painful one but please be assured there are doctors and physiotherapists who can help us through this. The more we raise awareness the more likely other health professionals will be interested in learning.

I am committed to helping and supporting others who suffer this horrendous pain and endeavour to do so via HOPE organisation and http://www.pudendalhope.org
Please know that we are real people who have suffered as you are suffering and we can fully relate to your symptoms as well as your pain and frustration of looking for answers to this horrible condition.
Please feel free to ask questions and once again, welcome to HOPE. (Health Organisation for Pudendal Education)

Catherine (Perth W. Australia )

Thank god for you all!

ataraschimmel wrote:Thank god for you all!

Ditto! with knobs on! well said ataraschimmel.

Thank you for your dedication and hard work! I thank God for this site and you all.

Missy

What a pleasant surprise, Calluna! Congratulations and THANK YOU for your Directors status!
Warmest of regards,
Karyn

I'm so greatful for all you! ThANKS for your work and dedication. This is such a painful and frightening condition without this website I would feel so alone!

I would lke to let our members know that currently we have 11 Directors of HOPE.
Hopefully we can continue to help everyone in their plight to find out more information about treatments and therapies that can assist in the day to day capability of managing living with PN issues.
I hope that our Directors will contirubute their merits and enthusiasm here in this thread so that everyone can learn who they are and what they can contribute to HOPE as an organisation.