HOPE Physician Advisers

Please click on the physician’s name to view their qualifications. Gerard Amarenco, M.D., Neurologist, France  Eric Bautrant, M.D.,  Pelvic Surgeon, France Jacques Beco, M.D., Obstetrician and Gynecologist, Belgium Deborah Coady, M.D., Gynecologist, USA A. Lee Dellon, M.D., PhD., Peripheral Nerve Surgeon, USA Robert Echenberg, M.D., Obstetrician and Gynecologist, USA Tibet Erdogru, M.D., Surgical Urologist, Turkey… Continue reading HOPE Physician Advisers

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Larry’s Story

I’m not exactly sure what brought me back to the Pudendal boards other than to offer a message of hope to all that are going through the agony brought on by PNE.  My story goes back to 2000-2001: After seeing the usual multitude of doctors I ended up at the Mayo Clinic with Dr. Antolak. … Continue reading Larry’s Story

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How to: register/login

Registration The first time you have to register as a user.  Here is how to do this. Go to the forum login page at this link:  http://www.pudendalhope.info/forum/ucp.php?mode=login (Or you can click on “forum login” on the ribbon at the top of this page.) Next click “register” on the right near the top of the page. Click “I agree to these terms.” Make a username. It is best not to use your full name. Think about your privacy. A good choice… Continue reading How to: register/login

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External Links

Information on Chronic Pain from National Institute of Health Pain: Hope Through Research Other Patient Support & Educational Organizations American Chronic Pain Association Pelvic Pain Support Network Interstitial Cystitis Association External links policy: All websites referenced on this page must be either HONcode accredited or sponsored by a government agency or college/university. Health Organization for… Continue reading External Links

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Catherine’s Story

“Following a routine vaginal hysterectomy, I was left with the most horrendous chronic pelvic pain…” In August of 2004, following a routine vaginal hysterectomy, I was left with the most horrendous chronic pelvic pain. A pain so excruciating, sitting was not an option. I can only describe the pain as that of a foreign body… Continue reading Catherine’s Story

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How to Contact Others

It is possible to talk to fellow sufferers about your problems . This can done on our forum in a anonomous way. But if you only want to read , the public posts ,it is possible to read without registration A detailled discription of how to login follows here or click the Go to the forum… Continue reading How to Contact Others

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Kris’s Story

I am a 47 year old male, I work in IT  involving sitting all day long,  and in my free time I was a avid cyclist and runner .I often ran more than 50 km a week and cycled  250 km in one week.Everybody should say ..you are very healthy . right ?? I remember the first time… Continue reading Kris’s Story

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Diagnosis

Diagnosis Overview The sacrum, by virtue of its anatomic location, is a structure that presents itself to the attention of multiple medical specialists. This is why people with chronic pelvic pain will often visit many gynecologists, urologists, imaging specialists, gastroenterologists, neurologists and pain specialists before finding the correct diagnoses. Pudendal neuralgia is a rare condition,… Continue reading Diagnosis

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Amanda’s Story

My pudendal nerve problems began immediately after a vaginal hysterectomy in March, 2003.  This surgery included a pelvic floor repair, bladder repair and right ovary removal.  Immediately following my surgery, I felt a burning fire in my perineum, urethra and could not sit at all without feeling like I had a red hot poker inside… Continue reading Amanda’s Story

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Wendy’s Story

At the age of 31, I started to try and start a family with my husband. My first pregnancy was an ectopic pregnancy. I finally got pregnant at the age of 35. Me and my husband were so excited. What an amazing experience. The whole 9 months of my pregnancy felt almost like a small… Continue reading Wendy’s Story

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