Search found 13 matches

by kimc
Sun Jan 25, 2026 9:28 pm
Forum: UK & IRELAND
Topic: UK doctors & 3T MRI update
Replies: 16
Views: 18329

Re: UK doctors & 3T MRI update

I cannot recommend anyone wasting their money on a 3T MRI of their pudendal nerve. In the supine position used for MRI, the Sacrospinous and Sacrotuberous ligament are not compressing the PN significantly. In patients with swollen or ossified SS/ST ligmants sit, those ligaments have a "scissor&...
by kimc
Tue Jan 20, 2026 2:44 am
Forum: NEWS & UPDATES
Topic: PN is a simple nerve compression and can be decompressed now Robotically
Replies: 18
Views: 398518

Re: PN is a simple nerve compression and can be decompressed now Robotically

There has been good results from the laparoscopic approach. Dr. Erdogru had 81% good to excellent results with that approach in his 14 case series in 2014. However, the visualization and steadiness you get with Da Vinci is markedly superior. I see no reason to approach this without a robotic laparos...
by kimc
Tue Jan 20, 2026 2:35 am
Forum: NEWS & UPDATES
Topic: PN is a simple nerve compression and can be decompressed now Robotically
Replies: 18
Views: 398518

Re: PN is a simple nerve compression and can be decompressed now Robotically

Dr. Antolak, now retired, was a gem of a physician and one of the few Urologists who tried to understand and treat this condition. Born in the era he was, he ultimately adopted the surgical techniques of that era and helped many patients with the external approach thru the perineum and transgluteal ...
by kimc
Tue Jan 13, 2026 6:32 pm
Forum: MEDICAL ADVANCES & EDUCATION
Topic: 2024 Transgluteal Surgery with Dr. Conway
Replies: 24
Views: 76391

Re: 2024 Transgluteal Surgery with Dr. Conway

So glad to hear about your success! Regardless of approach, the key is adequate decompression and not injuring the nerve further from the procedure or post op swelling/scarring. There enough people that have improved with the "external approaches" that strongly suggest it is a valid approa...
by kimc
Tue Jan 13, 2026 3:42 am
Forum: MEDICAL ADVANCES & EDUCATION
Topic: 2024 Transgluteal Surgery with Dr. Conway
Replies: 24
Views: 76391

Re: 2024 Transgluteal Surgery with Dr. Conway

Another consideration. The best review of surgical approach to Transperineal and Transgluteal Approach to PNE is: https://pmc.ncbi.nlm.nih.gov/articles/PMC10990758/ It mainly reviews the Transperineal and Transgluteal approach to PNE. Both of these approaches were pioneered in the last few decades, ...
by kimc
Mon Jan 12, 2026 4:13 am
Forum: NEWS & UPDATES
Topic: PN is a simple nerve compression and can be decompressed now Robotically
Replies: 18
Views: 398518

Re: PN is a simple nerve compression and can be decompressed now Robotically

Thank you. I need to be clear to anyone following on the costs since they are extreme in my experience and we all need to be transparent about our experiences with that. It is clear to me that they will come down once it is accepted that is a nerve decompression condition and not "rocket scienc...
by kimc
Sun Jan 11, 2026 10:05 pm
Forum: NEWS & UPDATES
Topic: PN is a simple nerve compression and can be decompressed now Robotically
Replies: 18
Views: 398518

Re: PN is a simple nerve compression and can be decompressed now Robotically

The 2nd point. Before surgery, typing the longer initial notes I wrote while lying on my back would have caused my PN pain to escalate to a 5 to 7/10 burning sensation that spread to my buttocks, perianal, perineal areas and scrotum bilaterally. With surgery, after 3 plus hours of same position to t...
by kimc
Sun Jan 11, 2026 10:00 pm
Forum: NEWS & UPDATES
Topic: PN is a simple nerve compression and can be decompressed now Robotically
Replies: 18
Views: 398518

Re: PN is a simple nerve compression and can be decompressed now Robotically

Thank you! My response was long and detailed so I want to be sure I clarify just 2 points. The surgery costs were not $100k. Dr. Erdogan = $13 k. I paid him by Wire in advance. This paid for a 4 Hour surgery with Pudendal Neurolysis Bilaterally. In my case that was removal of Both SS ligaments and c...
by kimc
Sat Jan 10, 2026 8:12 pm
Forum: NEWS & UPDATES
Topic: PN is a simple nerve compression and can be decompressed now Robotically
Replies: 18
Views: 398518

Re: PN is a simple nerve compression and can be decompressed now Robotically

Happy to answer. The United States and basically the entire world is still way behind on this diagnosis. Probably the main reason I hesitated on surgery is that I was certain the cause of my pain was my microwave prostate surgery. The plastic surgery procedures which approach the ligaments from the ...
by kimc
Fri Jan 09, 2026 4:35 pm
Forum: NEWS & UPDATES
Topic: PN is a simple nerve compression and can be decompressed now Robotically
Replies: 18
Views: 398518

Re: PN is a simple nerve compression and can be decompressed now Robotically

My mistake, Dr. Tibet Erdogru. I agree with having some degree of luck as my nerve has been compressed for over 20 yrs. it could have been so damaged that I would have no relief. It is still possible that I will not get the final 10% of relief I would hope to get. There is reason for that hope and w...

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