Search found 7 matches

by helpmelord
Fri May 16, 2025 9:54 pm
Forum: WELCOME CENTER
Topic: Mri question - new member
Replies: 2
Views: 744

Re: Mri question - new member

i just had pelvic mris done w/ and w/o contrast. i ws hoping something treatable wld show, since the uro gyn already dx'd me PN entrapment. after pcp and uro gyn both rvwd - there's nothing there showing entrapment. uro gyn said "you can hv PN neuralgia w/o entrapment" Not sure if that ans...
by helpmelord
Sun May 11, 2025 11:42 pm
Forum: MEDICAL ADVANCES & EDUCATION
Topic: Pudendal neuralgia exercises on YouTube ???
Replies: 8
Views: 10554

Re: Pudendal neuralgia exercises on YouTube ???

my name is valerie and i was just dxd w/ PN nerve entrapment and, or neuralgia. orders given me for toradol, joke, and nerve blocks and pft. invisible pain, i find drs. won't tx something they cannot quantify or see. i hv a pelvic mri scheduled this thursday. my male pcp ordered that after 3 uro gyn...
by helpmelord
Sun May 11, 2025 10:13 pm
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: I’ve found relief and want to share how I got here
Replies: 15
Views: 17351

Re: I’ve found relief and want to share how I got here

thank you for sharing your successful story; thank god you found relief. i cant drive either; i don't think anyone gets how debilitating ic ibs and pn are. i've got all three. what do i do? i find when i advocate for self, like you explained, bullet pt list etc., i am met w/ disdain or something. sh...
by helpmelord
Sun May 11, 2025 10:08 pm
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: Suicide Attempalls---and finally pain free!!!!!
Replies: 7
Views: 6183

Re: Suicide Attempalls---and finally pain free!!!!!

ive been on cymbalta for treatment resistant depression ; did nothing for me. many ssri snri tca too. finally did ketamine infusions. first uro gyn dx m initially w a normal bladder; i was right there when he did cystoscopy; no hunners lesions ; no bleeding. he said 'see you hv a n ormal bladder'. a...
by helpmelord
Sun May 11, 2025 10:00 pm
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: Suicide Attempalls---and finally pain free!!!!!
Replies: 7
Views: 6183

Re: Suicide Attempalls---and finally pain free!!!!!

my 4th uro gyn dxd me w/ PN; if thats what this is, i wld i do not know how you survived 23 yrs. i can't sit to type; i stand. the pain is at the point of affecting everything in my used to be life. i no longer hv a life; i breathe, hv a pulse. but my partner died last august ; somehow tht traumati...
by helpmelord
Sun May 11, 2025 7:55 pm
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: Permant nerve damage?
Replies: 6
Views: 10130

Re: Permant nerve damage?

i am in same confused and painful question place; i'm so in pain i cannot think straight; cant even figure out how to start a fresh welcome post for myself in this hope forum...........pls someone tell me tht much...val :idea:

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