Health Organization for Pudendal Education

Hi again FC, I can really hear your fatigue.. things have really gotten rough for chronic pain patients.. I spent 30 minutes trying to get 2 Vicodin per day from my new care provider.. an NP.. who isn't allowed to prescribe opioids and declined to consult with anyone. Just so annoying... yet she ask...

Hi FC, sounds like you'r having a down day.. do you want to share how things have been for you lately? I'm new here so I don't know other folk's stories. But I do feel for you.. it is tiring.. it can drag you down. Sometimes I just accept it let myself feel how I feel but I don't cry much anymore. I...

Hi everyone, I feel it might be helpful to share a little bit of my history here. Every women's PN and journey is different yet similar: When my symptoms started I was an OB/GYN nurse practitioner/midwife. The symptoms were not subtle! It started with burning pain-in the sacral hollow where the pude...

I never did well with yoga, too much stretching... I did enjoy the arthritis foundations warm pool exercise class.. it was just important to not overdo it. But it was in a supportive environment so there was no pressure to exercise beyond my tolerance. When my symptoms first started, before my pelvi...

Thank you Violet... I agree 100%.. we need to keep supporting one another... because others can't imagine what this condition can do to a person.

Hi everyone, I have been amazed at how calm I am now after no longer working, sitting, or driving. At first I thought I would never know what it meant to relax. It took 5 years. Out of curiosity I asked an AI chatbot the question below. The answer was very interesting and I think important for other...

Hi Andyalp, Clearly you have significant neuralgia symptoms in your pelvis and genitals ... the electric shock pain.. skin hypersensitivity. Please don't blame yourself or your brain at this early stage.. Doctors will just say its "neuropathic" if they don't know what to do next.. This is ...

Hi Violet.. clearly another veteran.. thank you for being here consistently for years even after you got better! Like the idea of the sitz bath.. a regular bath makes it worse.. from sitting on hard tub but a sitz bath might help calm things... warm certainly helps me better than ice.. which makes t...

Greetings to all, just joined forum.. thought I would share a bit of my story.. as I have found comfort in hearing others.. such a relief not to feel alone.. and to be in a place where folks know what your talking about! I bet all of you would agree on that.. I feel I am a PN/PNE veteran survivor no...