Health Organization for Pudendal Education

For men this often leads to PN not being diagnosed. That's sad. And for women they are often diagnosed with vulvodynia which literally means pain in the vulva -- like they didn't already know they had pain there? It tells you nothing about the actual cause. I suppose the same could be said about pu...

That's a good idea to ask the pain management doctor and the rep. Hopefully they will have some ideas for you. I used lexapro (an SSRI antidepressant) for PGAD symptom relief because I couldn't tolerate the side effects of tricyclic antidepressants very well. It didn't take away the problem entirely...

I think they are grouping them together for discussion purposes but the diagnosis and treatment is very dissimilar. I think it also implied PN was a musculoskeletal disorder, which was a new one on me. Right, I don't even know how chronic prostatitis is diagnosed and treated. :oops: As far as PN, t...

I was trying to find studies that would support the use of neuromodulation for pudendal neuralgia or related problems but I'm not finding enough conclusive studies, unfortunately. I was also trying to think of other ways they could code your diagnosis that would have studies to support it but I'm no...

I can't tell for sure if he is equating chronic prostatis with pudendal neuralgia or just including both of them as separate diagnoses in the list of problems that their protocol addresses.
The article is from a few years back so it would be interesting to hear where their research has led.

NYPain, thanks for checking into it. It seems a bit misleading to have the article on their website if none of their doctors provide the treatment described. It's unfortunate.

I had a nerve ablation with Dr. Meera Kirpekar last year. I had nerve testing with electricity before the ablation, which was more painful than the ablation itself. The nerve block was after. Wow, nerve testing with electricity does sound painful. I'm surprised they didn't do the nerve block prior ...

I recently read the book Annie Bot by Sierra Greer, and it does have one of the truest depictions of my experience that I’ve ever seen in writing. I was looking at a review of the book and my heart breaks for you. I have a small understanding of how you feel, having gone through PGAD for a year or ...

There is increasing evidence that suicide is not necessarily associated with mental illness and it's really important to acknowledge that whilst listening to those suffering is important, it is sadly, not a solution. True....I remember that the only thing that helped relieve the depression I was in...

Aussie, that is so beautiful it brought tears to my eyes. Thank you so much for posting it.

Violet