Health Organization for Pudendal Education

matthewscott wrote: ↑Fri Aug 07, 2026 10:08 pm If this is a plugin limitation, having an option to block label removal while still allowing users to switch labels would be very useful.

Not sure I understand your comment, matthewscott. Are you referring to the deleted posts?

Hello PNVeteran, Welcome to the forum. I'm sorry to hear you have been on this PN journey for so long, but I appreciate you sharing your words of wisdom and what works for you. I am a type A person too, so I admire your ability to let go of some of the not so important things. That's tough to do. Wh...

Could this have started with a prostate infection or inflammation after COVID, which then caused chronic pelvic floor muscle guarding and eventually neuropathic pain? Or is the opposite more likely—that pelvic floor dysfunction came first, leading to urinary stasis and eventually prostatitis? That'...

In my case, piriformis syndrome was secondary to pudendal nerve entrapment. My gait was odd at that point so in my case it was obvious and didn't occur until a year into nerve entrapment. Sounds similar to what happened to me. I had PNE pain first and later developed piriformis syndrome. It's unfor...

Mindfulness didn't work for me either, Eraser, although I know people who say it worked for them, so I guess different things work for different people. But I agree with you - the surgical treatment option was the other thing that gave me hope too -- knowing that I still had treatment options to pur...

Hi Shane, Thanks for sharing your experience. I'm sorry to hear you are still having rough times. Normally, I try to keep religion out of my discussions here so we don't get off topic, but given your question - what helps us find peace? - I think it is OK for people to respectfully discuss in this t...

The website will be down for maintenance for several hours either Thursday, July 23 or Friday July 24, 2026. It should be back up in a few hours.

Violet

Hi Maddin1, Yes, I agree with what Dr. Demmel said that temporary pain relief after the pudendal nerve block could be confirmation of pudendal neuralgia. I am just curious why you got worse long-term after that. If they use a steroid in the block, sometimes it can cause a temporary worsening of symp...

Hello Maddin1, Welcome to the forum. It sounds like you have been through a very rough time. Some of the symptoms you are describing meet the Nantes Diagnostic Criteria for pudendal nerve entrapment described in this article https://www.pudendalhope.info/wp-content/uploads/2010/08/NantesDiagnosticCr...

Jaxi, I know you have had a really rough road which I'm sure makes it hard to trust any doctors, and I'm sad that you haven't gotten better. Unfortunately, there are some patients for whom there are no good answers, because humans just don't have all the answers for healing everyone. I wouldn't go s...