what hysterectomies most likely to cause PN?

Hysterectomy, Ovary Removal, SIJD, Piriformis Syndrome etc
pianogal
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Joined: Mon Sep 20, 2010 2:11 am
Location: Orange County, CA

what hysterectomies most likely to cause PN?

Post by pianogal »

hi,
an acquaintance of mine mentioned she is having prolapse repair and a partial robotic hysterectomy (where they remove the uterus not the cervix or ovaries)

knowing prolapse can cause PN, I am glad for that repair.
but knowing hysterectomies can cause PN pain, I am worried for her.

does anybody know which hysterectomy types are most prone to PN pain. I remember I think that abdominal ones are safer and I assume that since hers is less invasive there is less risk.

has anyone on these forums had a partial robotic hysterectomy and still gotten pn?

I tried to warn her somewhat, but I am not super bold at giving people bad news...
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
Lernica
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Joined: Fri Jan 14, 2011 10:31 pm

Re: what hysterectomies most likely to cause PN?

Post by Lernica »

Pianogal,

I would think that nicking the pudendal nerve during a hysterectomy is a very unlikely and unfortunate event, likely due to an incompetent surgeon or a very unusual and/or complicated case. I wouldn't worry too much about your friend, assuming she has a competent and experienced gynaecologic surgeon. She will be having a laparoscopy, no?

Lernica
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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Celeste
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Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: what hysterectomies most likely to cause PN?

Post by Celeste »

Unfortunately I think the robotic surgery being called "less invasive" may only be a marketing slogan. Even with a smaller incision, PN pain can result from a hysterectomy.

http://www.pudendalhope.info/forum/view ... 3183#p3183
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
GraceUnderFire
Posts: 115
Joined: Fri Sep 17, 2010 1:57 pm

Re: what hysterectomies most likely to cause PN?

Post by GraceUnderFire »

If the incision is too long, the retractors placed in the wrong place or the cuff tacked directly to the nerve it can happen. Mine was an abdominal hysterectomy with a bikini cut even though I told him I wanted the "old fashioned" vertical cut. I hadn't worn a bikini since 1978!
Woke screaming from ab hyst 6/08
Diagnosed w/PN, ilioinguinal & iliohypogastric neuralgias 1/09
3 PN blocks w/Dr Quesada
Rt side TIR, ilioinguinal neurectomy & vestibulectomy 5/09 Dr Conway
Left side TIR 2/10 Dr Conway
Potter MRI 9/10 and consultation w/Loretta & Dr Hibner 12/10
Bilateral ilioinguinal, iliohypogastric, genitofemoral release w/Dr. Hashemi Aug 2011 left & Sept rt
Bilateral TG surgery w/Dr. Conway will be in January 2012
KC17
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Joined: Fri Sep 17, 2010 2:07 pm
Location: Orlando, FL

Re: what hysterectomies most likely to cause PN?

Post by KC17 »

My mom just had a Robotic Assisted Hysterectomy on Tuesday. I worry for her nerve every day.
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.

Unsure what to do next because my pelvis is a mess.
Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Re: what hysterectomies most likely to cause PN?

Post by Lernica »

KC17 wrote:My mom just had a Robotic Assisted Hysterectomy on Tuesday. I worry for her nerve every day.
Krista,

Don't worry about your mom! It is a very rare complication!! Put your mind at rest. It's not like you don't already have enough on your plate!

Lernica
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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A's Mommy
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Re: what hysterectomies most likely to cause PN?

Post by A's Mommy »

Pianogal,

Make sure her physician is trained highly in robotic hysterectomies. Dr. Hibner does them all the time. Probably more so than PNE.

A's M
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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Celeste
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Location: central Ohio

Re: what hysterectomies most likely to cause PN?

Post by Celeste »

A's Mommy wrote:Pianogal,

Make sure her physician is trained highly in robotic hysterectomies. Dr. Hibner does them all the time. Probably more so than PNE.

A's M
And yet if you see the link in my post above, you'll note that PN pain has even resulted from one of his robotic hysterectomies. We need to face that no one can explain why this surgery can cause this pain, and that no surgical approach whatsoever can be said to be free of this complication.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
nyt
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Joined: Sun Oct 31, 2010 3:24 am

Re: what hysterectomies most likely to cause PN?

Post by nyt »

Celeste, I read the link regarding the robotic LAVH started by MsRivers. She indicates that her PN started after this procedure but she does not mention the dr.'s name. In your comment it sounds to me like Dr. Hibner did her surgery but I do not see that in this link. Is the link incorrect, did I misunderstand your statement?

This is not an attempt to prop up one Dr. or another just an attempt to make sure the information that is posted is accurate.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Celeste
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Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: what hysterectomies most likely to cause PN?

Post by Celeste »

nyt wrote:Celeste, I read the link regarding the robotic LAVH started by MsRivers. She indicates that her PN started after this procedure but she does not mention the dr.'s name. In your comment it sounds to me like Dr. Hibner did her surgery but I do not see that in this link. Is the link incorrect, did I misunderstand your statement?

This is not an attempt to prop up one Dr. or another just an attempt to make sure the information that is posted is accurate.
I've spoken with her extensively, and yes Dr. Hibner did do her hysterectomy robotically and the pain came on afterwards. I think we just all need to understand that hysterectomy is a risk for PN pain, and it clearly has nothing to do with small of a "less invasive" incision is made.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
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