Neurontin--the wrong way

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.
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carolynm
Posts: 465
Joined: Fri Jul 22, 2011 4:25 am
Location: CO

Neurontin--the wrong way

Post by carolynm »

I was so desperate to get my pain under control last week that I went from 900 mg to 2000 mg in 1 week.

Now I have an intractable headache and flu=like symptoms.

Has anyone else made this stupid mistake?

Ugh. I traded one thing for another.

cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Re: Neurontin--the wrong way

Post by Lernica »

Cari,

That increase sounds too fast to me. Did your doctor recommend this? Too much gabapentin too quickly can certainly cause headache and flu-like symptoms. Can you bring it back down a bit?
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
donstore
Posts: 463
Joined: Mon Nov 08, 2010 6:13 am
Location: San Francisco

Re: Neurontin--the wrong way

Post by donstore »

Cari,
Maybe methadone would be a more effective opiate for you if you haven't tried it yet. People have posted that it was the most effective for neuropathic pain with less drowsiness. Anything's worth a shot at this point. Wishing you all the best.

Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
carolynm
Posts: 465
Joined: Fri Jul 22, 2011 4:25 am
Location: CO

Re: Neurontin--the wrong way

Post by carolynm »

Lernica & Don,

Always good to hear from you both.
No, I was doing it "my own way" (typical me). Trying to get some pain relief because the opiates weren't touching it. That's why I haven't even considered methadone.

have a great day friends,
cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Neurontin--the wrong way

Post by HerMajesty »

I wonder if you might actually have a flu type illness. When I went downhill to my most disabled summer of 2009, it was due to taking a 3600 road trip (brilliant! :lol: ), and during that trip I started popping neurontin like it was candy. I got spacey and high, but that was it. Of course everyone reacts to meds differently but having done a sudden neurontin binge myself, I am thinking headache maybe, flu like symptoms not so sure.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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