new here, think i have PN

[scope]

I haven't used a roho cushion but will ask about them when i see wheelchair services.
The Mri is to look to make sure i havent damaged my spine, so i don't think it will be looking at the pudendal nerve, but my spine. I've got rods in my spine from T2 to L5 so i was wondering if that might play a part too.

i'll have a look at the mri sub forum

thanks

[helenlegs 11]

I wouldn't have thought that the spinal area that you have the rods would have any effect on genital numbness scope, unless there is evidence of cauda equina syndrome. The pudendal nerve which innervates the penis and scrotum comes from the sacral nerve roots S2,3 and 4. The other things to get checked would be pelvic floor muscles and the piriformis muscle just in case any are tight and restricting the pudendal nerve. It's more usual to be the pelvic floor muscles causing a problem.
Hope you get some answers and get this problem sorted out soon.
Take care,
Helen

[scope]

Hi,

The Mri came back fine. But the issue is still there/getting worse

If it's the pelvic floor muscles causing an issue, what can i do to help it?

[janetm2]

A PN - aware physical therapist could work on the pelvic floor muscles. There is a list off the homepage.
janet

[scope]

Hey,

I've found one off of the home page, that i will write an email to.
in terms of working on the pelvic floor muscles, what kind of things will i need to do?

[Violet M]

The PT might do pelvic floor myofascial release. Possibly biofeedback, soft tissue mobilization, or teaching you how to relax the pelvic floor. They should evaluate your pelvis for misalignment, SIJD dysfunction or other musculoskeletal anomalies.

Violet

[scope]

Is it worth contacting one of the dr's on the list too? as I'm not sure when i will be able to go up to scotland (Although if the physio replies saying it would be worth it, i will go up)

[Violet M]

Yes, it's good to get on the waiting list because I've heard it can take a long time to get an appointment. It's generally considered good to start with non-invasive, conservative therapies first so that's why many people start with PT first.

Violet

[scope]

Ok, should i just go to my GP's to get on the waiting list or is there something else I have to do?


thanks for all the help, i really appreciate it. I'm obviously quite worried about it all, but it really helps that there is such a helpful and supportive community here

[Violet M]

In the UK, I think you have to get a referral from you GP before you go to a specialist, right?

Violet