My sad story

[Balenul]

Hello !



First off all i am sorry to disturb you with my long message but i am desperate and i used all options in my country.



I have big problems with a constant sensation of urinary urgency ( urethral one is like a constant pressure , that sometimes get weaker after urinating , but sometimes remain same or get even worse ) , it all started after a pituitary surgery that gave me diabet insipidus and i urinated huge amounts for 1 week .

My urologist found a primary bladder neck obstruction ( he only did urodinamics and a flexible cistoscopy , in Romania we don t have video urodinamics sadly ) but he thinks it is not the only cause and is more a nerve / muscle problem cause even before pituitary surgery i strained many times to urinate and that lead to a rectal prolapse i treated with abdominal laparoscopy with a absorbable mesh.

First few days after prolapse operation i felt great but when i started to defecate again i struggled and strained a lot for more than one month , and when things started to get better i got this pituitary apoplexy.

All happened last year , 2 operations in 2 months sadly that impacted my life a lot and i am only 37 years old.

After ibs treatment the stool last summer started to be normal but slowly right now i kinda have same problems like i had 1 year and some months after prolapse surgery , fragmented stool always even if is soft that i defecate in many small stools over the day and this huge urinary problem ( way worse than this defecation problem ).



Right now sometimes I can pee almost normal but this is rarely , most of the time I have to strain a lot.



I studied so much my problem i became a little doctor myself even if i am an economist. I really see no hope to cure in Romania and i wonder if is not nerve related my problem , maybe not entrapment but a neuralgia for sure. Sadly me and my wife are losing hope. I hope i did not bored you with my message but i am really hopeless right now.
I am curios if we have patients here with my symptoms , especialy the urinary ones that managed to find a cure.My quality of life right now is almost non existent.
With respect , Valentin !

[Violet M]

Hi Valentin. So, yes, an irritated to pudendal nerve can cause a feeling of constantly needing to pee. You could try an SSRI antidepressant drug such as lexapro to help with the symptoms temporarily until you can figure out the root cause of the problem -- whether it is due to pudendal nerve irritation or some other anatomical problem that is making it difficult to empty your bladder. A tricyclic antidepressent like amitryptiline might help if an SSRI doesn't.

You might also want to get an ultrasound of your kidneys to make sure they are not being damaged if there is a backflow of urine causing them to be swollen.

A good pelvic floor PT should be able to tell you if your pelvic floor is tense. A tense pelvic floor can irritate your pudendal nerve. On the other hand, an irritated pudendal nerve can be the cause of a tense pelvic floor. So, it can be tricky figuring out the root cause. If you are having prolapses at such a young age, you may need to consider whether you have some type of genetic collagen deficiency that is causing your ligaments to be lax and not supporting your pelvic floor. Lax pelvic ligaments can sag and rub on the nerve -- irritating the pudendal nerve. It sounds like you have already had surgery to repair your prolapse so hopefully over time the pudendal nerve will recover and calm down, especially if you can stop straining. But if it doesn't, you may need to consider whether it is being irritated by ligaments.

Violet

[Balenul]

Violet i talked with both doctor Itza from Spain and doctor Bollens from Belgium and both had different oppinions about my case , first said is a miofascal syndrome and doctor Bollens said my nerve is entraped so right now i don t know what to do.... In your case how the doctors became sure you have entrapment , cause is not a perfect test for it i saw ( not even doppler ultrasound etc ) also from what i know until they do a surgery they can t know if is a simple pudendal neuralgia or nerve entrapement but maybe i am wrong ? Also maybe other people can help me with the stories about how doctors put them a pudendal nerve entrapment diagnostic.
Thank you

[Balenul]

Hello ,we also have patiens with pudendal neuralgia or pudendal nerve entrapment that most of the time have big difficulties to urinate ( weak and intrerupted stream and also need to strain alot ) sometimes i can pee almost normal but rarelly ? Thank you

[Larin20]

Hi, I have constant urge to urinate that don't dissapear after urination. Pls let's contact in some messenger

[Balenul]

Sadly is a horrible life for us...

[benraycamp0]

Hi @Balenul - how did you get in contact with Dr. Bollens?

[Balenul]

Email.You have his email on this website at doctors Europe