Nerve damage on one side, pain on the other

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
Post Reply
User avatar
Violet M
Posts: 7158
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:
Contact Violet M

Nerve damage on one side, pain on the other

Post by Violet M »

river133 wrote: ..Would someone please explain to me why all of my nerve damage is on my left side but my leg and butt pain is all on the right side. .This just started a couple of months ago, these new pains... It will be 3 years in Dec. since the burning and not being able to sit started... He said we will know by Dec if I will be having surgery...I will be cancelling my appointment with Dr. Hibner if all goes well with Dr. A. Dear Lord I sure do hope so.... I would love to keep the appointment with Dr, Hibner also, but the expense of it all takes care of that.....I told Dr. A that the diahrea and the pn started at the same time... he said that this thing can start 20 years before the pain begins... The diahrea was because of the pne. not the other way around.... interesting....
How do you know for sure that your nerve damage is on your left side? Did you have some sort of test such as the PNMLT that showed that?

My PNMLT showed that the left side was more damaged than the right but most of my pain was on the right. The PNMLT measures the motor function of the nerve, not the damage to the sensory fibers. PNMLT stands for pudendal nerve motor latency test and it measures how fast the nerve conducts a motor signal from point A to point B. It is not an accurate indication of how much pain you are in.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Top
User avatar
Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Nerve damage on one side, pain on the other

Post by Karyn »

Hi River,
Wishing you the very best with Dr. A. Interesting - my diahrea symptoms started with the PN, too. If not diahrea, my stools are very soft, short and flat. Do you have motility issues, too? Never had bowel problems in my life ...
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Top
river133
Posts: 260
Joined: Sun Sep 19, 2010 9:29 pm
Location: Melrose. Mn.

Re: Nerve damage on one side, pain on the other

Post by river133 »

Yes , Dr. Antalok did the PNMLT and that showed the left nerves were damaged... Thank you for your response.. I never did have problems with diahrea before either...I will keep you updated , will get my first nerve block next week... KMT, if you are reading this, I was not able to receive your response due to the changes. River133
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Top
User avatar
Violet M
Posts: 7158
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:
Contact Violet M

Re: Nerve damage on one side, pain on the other

Post by Violet M »

River, I had my PNMLT and nerve blocks from Dr. A also. Good luck next week. ;)
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Top
paulette
Posts: 184
Joined: Sun Sep 19, 2010 6:13 pm

Re: Nerve damage on one side, pain on the other

Post by paulette »

Are there any surgeons who would consider doing the PNE surgery without the nerve blocks? I have an extremely sensitive nervous system, even physical therapy gives me a flare. Injections in my SI joint caused irreversible inflammation. If i begged hard enough, would anyone consider doing the surgery based on the symptoms alone? Thanks for any opinions. Paulette
Top
User avatar
Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Nerve damage on one side, pain on the other

Post by Karyn »

Hi Paulette,
I haven't heard of any that will do it without the blocks, but I do feel for you. I've had nerve blocks and an infusion. No flare from the infusion (no pain relief, either) but the flares from the blocks were horrible. Even though it's considered inconclusive, have you considered having the 3TMRI? At least you may have a little ammo with that.
Wishing you the best,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Top
paulette
Posts: 184
Joined: Sun Sep 19, 2010 6:13 pm

Re: Nerve damage on one side, pain on the other

Post by paulette »

Thanks, Karyn,
What is 3TMRI, and where is it done? Since the blocks are mainly diagnostic, would a surgeon be willing to order a block with just the marcaine and no steroid? Paulette
Top
User avatar
Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Nerve damage on one side, pain on the other

Post by Karyn »

Hi Paulette,
I'm so sorry but I don't know about the injection cocktail requirements. Hopefully, someone else on the forum will know. I'm going to leave it to Pelvis Stressly, Ali or Hilary to explain the 3T MRI. You get it at the Hospital for Special Surgery in NYC and there's contact info under the List of Doctors.
I'm sorry I haven't been very helpful.
Best wishes,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Top
User avatar
Violet M
Posts: 7158
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:
Contact Violet M

Re: Nerve damage on one side, pain on the other

Post by Violet M »

paulette wrote:Thanks, Karyn,
What is 3TMRI, and where is it done? Since the blocks are mainly diagnostic, would a surgeon be willing to order a block with just the marcaine and no steroid? Paulette
Paulette, Dr. Antolak used to give nerve blocks with marcaine and heparin instead of a steroid. Are you very sensitive to steroids?
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Top
river133
Posts: 260
Joined: Sun Sep 19, 2010 9:29 pm
Location: Melrose. Mn.

Re: Nerve damage on one side, pain on the other

Post by river133 »

I just want to tell you that I will be having surgery by Dr. Antolak on the 5th of Jan.. They had two cancellations.. It isn't going to be soon enough... I am 74 and have never had surgery before...Minor little things, gall bladder , I was home the same day... I am trying to remember to take a day at a time here,, I switched to morphine and it is making me sick to my stomach, so I am going back to the fetnyal.... hopefully tomorrow.when my Dr. gets in. I can not seem to find where I have written before... I am not much with it these days....Have a wonderful Xmas , I will be thinking of all pne people out there...cured and not cured, if there is such a thing as cured... Ellie
Surgery Jan.05 2011 TG with Dr Antalok. Dr.Chambi May of 2012 showed injury from a fall on back, 11 years ago. My piriformis muscle caused a large amount of fibrosis .My sciatic nerve was growing through the piriformis muscle which caused a bifid p.muscle. . Dr Chambi decompressed the sciatic,pudendal,pfcn ,and peroneal nerves. I hope to have a nuerostimulator put in to help with the sciatic pain that never goes away. Most days are better with the pudendal if I do not sit at all.
Top
Post Reply

Return to “CAUSES & EFFECTS OF PUDENDAL NEURALGIA”