Success with redo decompression surgery

[Natedogg91]

Hi everyone,

I’m wondering if there any folks out there who have had redo unilateral pudendal nerve decompression surgery, ideally with Dr. Hibner and had a better outcome. I unfortunately am starting to think that my pudendal nerve have become “entrapt” either between ligaments and/or fibrotic scar tissue over the last 2 years. My symptoms were pretty severe prior to surgery and failed conservative treatment including multiple rounds of pelvic floor therapy and pelvic floor stretching. Would appreciate any insight any of you have on your experiences with Dr. Michael Hibner.

[jaxi123]

Redo was a failure for me. And re-entrapped again with scar tissue
Devastated and no dr will help

[Voorheesl]

Have you considered surgery with a physician that does it laproscopic? It's a much easier recovery time and I chose laproscopic because of some claims I read in the literature about reduced scar tissue and better visualization of the fibrotic tissue with the laprascope. When I consulted with Dr Hibner, his approach was much more invasive and also included botox at the time of surgery. He just seemed really convinced botox fixes everything every time I met with him and it really made it worse for me. Just my thoughts and I wish you well in your decision making.

[aussie_surfer]

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[bartland]

Hi everyone,

I’m wondering if there any folks out there who have had redo unilateral pudendal nerve decompression surgery, ideally with Dr. Hibner and had a better outcome. I unfortunately am starting to think that my pudendal nerve have become “entrapt” either between ligaments and/or fibrotic scar tissue over the last 2 years. My symptoms were pretty severe prior to surgery and failed conservative treatment including multiple rounds of pelvic floor therapy and pelvic floor stretching. Would appreciate any insight any of you have on your experiences with Dr. Michael Hibner.

I would love to see answers to this question as I am in the same situation, considering a redo surgery and Hibner appears to be the only surgeon I've found who definitely does redo decompression surgery. But man...it is a big gamble to spend that much money and go through the brutal recovery from transgluteal surgery again.

[Natedogg91]

My options are pretty limited at this point. I unfortunately had a regression of symptoms and have pudendal neuropathy (rectal dysfunction, erectile dysfunction, rectal/perineal/scrotal burning). Symptoms had improved significantly after my initial pudendal nerve decompression. As life went on and I started getting back to a more normal life including more sitting, the nerve didn’t like that and my symptoms started coming back. My wife and I want to try for kids soon and your standard ED treatments aren’t working as this is largely a neurogenic problem. I have an upcoming consult soon with Dr. Hibner and I’m willing to do whatever it takes to improve my symptoms. I have exhausted conservative therapies (yet again) without significant improvement in my symptoms.

[bartland]

My options are pretty limited at this point. I unfortunately had a regression of symptoms and have pudendal neuropathy (rectal dysfunction, erectile dysfunction, rectal/perineal/scrotal burning). Symptoms had improved significantly after my initial pudendal nerve decompression. As life went on and I started getting back to a more normal life including more sitting, the nerve didn’t like that and my symptoms started coming back. My wife and I want to try for kids soon and your standard ED treatments aren’t working as this is largely a neurogenic problem. I have an upcoming consult soon with Dr. Hibner and I’m willing to do whatever it takes to improve my symptoms. I have exhausted conservative therapies (yet again) without significant improvement in my symptoms.

If you're open to sharing, I would love to hear the outcome of your consult with Hibner. I'm in such a similar situation, have thoroughly exhausted all conservative therapies and am considering "betting the farm" on surgery with Hibner as I'm pretty much out of other options at this point. Mind if I send you a DM to stay in touch?

[Natedogg91]

Sure you can, I’ll be honest I don’t check this website as often as I used to after dealing with this for 3+ years. But we’ll see what he says! I’m starting with a virtual consult and likely flying down to Arizona soon after if he offers some options.

[jaxi123]

Hibner is big on Botox it was a complete waste for me
I think it’s another money making gimmick for him