AND it’s really starting to bother my nerves right now that I literally have to travel 1000 miles just for a consultation.
How on earth did you manage that?
MRI's are unlikely to show anything, even if there was.
That is often true for regular MRI's but the Hollis Potter protocol has settings that enhance the nerve and is more likely to show if the nerve is entrapped. I've seen Potter mri reports that show scar tissue. There are some places around the country who use her protocol but I don't know if it's worth the extra expense if you are already pretty certain you have a nerve entrapment. Many people who had regular MRI's that show nothing abnormal have ended up having a nerve entrapment when they go for surgery.
Sounds like they need to use this protocol everywhere.Violet M wrote: ↑Sun Mar 29, 2026 5:00 amThat is often true for regular MRI's but the Hollis Potter protocol has settings that enhance the nerve and is more likely to show if the nerve is entrapped. I've seen Potter mri reports that show scar tissue. There are some places around the country who use her protocol but I don't know if it's worth the extra expense if you are already pretty certain you have a nerve entrapment. Many people who had regular MRI's that show nothing abnormal have ended up having a nerve entrapment when they go for surgery.
Not sure why that is. My guess is that it's partly a matter of what opportunities and experiences they've been exposed to and having the equipment available to them. Some health systems are more willing to provide needed equipment to surgeons. The other thing is that urogynecologists historically treat only women and I think pelvic pain is more common in women. Dr. Gubbels and Dr. Shakiba are both urogynecologists. There aren't any specialties I know of that treat only men. ( unless you do an internet search and discover that andrologists treat only men. How many people have even heard of an andrologist?)drummermikey wrote: ↑Thu Apr 02, 2026 3:17 am
One thing I cannot understand, cannot believe, is that nowhere (and correct me please if I am wrong) in the USA is there a surgeon who accepts insurance who uses robot assisted or non-robot assisted laparoscopic surgical technique on men. Really? Why? What exactly is the reason for this? Violet, please chime in. Are the sexes THAT different anatomically that it makes the surgery THAT much more difficult?!! Why should I have to go to Switzerland or Turkey for this procedure?
OP, if you're still with me after all of that, a quick search yields the following doctors that apparently offer robotic laparoscopic surgery for PN. Dr. Khashayar Shakiba in New Jersey, Dr. Ashley Gubbels at the Cleveland Clinic.
Back when I had surgery I don't think any of us had even heard of the laparscopic approach. The approaches to PNE surgery have been evolving and hopefully getting better over time. Since it's less invasive than the traditional approaches, it might make sense to give it a try if you can and if the surgeon thinks you are likely entrapped. But you may want to ask about scar tissue formation and how to prevent it if you tend to form scar tissue.drummermikey wrote: ↑Thu Apr 02, 2026 3:17 am FWIW, if I had it to do all over again, I would stay away from the transgluteal method and go with robotic assisted laparoscopic surgery, and I would make sure that I had received the surgery from the one surgeon who performed more of these exact type of surgeries per year than any other doctor. I am wishing you the best.
I have heard of andrologists but they are very unlikely to be interested in PN, as it is a sub speciality of urology. Urologists on the whole are very disinterested in PN. It's a bit odd though why urogynecologists seem to have more of an interest in PN.Violet M wrote: ↑Mon Apr 06, 2026 4:23 amNot sure why that is. My guess is that it's partly a matter of what opportunities and experiences they've been exposed to and having the equipment available to them. Some health systems are more willing to provide needed equipment to surgeons. The other thing is that urogynecologists historically treat only women and I think pelvic pain is more common in women. Dr. Gubbels and Dr. Shakiba are both urogynecologists. There aren't any specialties I know of that treat only men. ( unless you do an internet search and discover that andrologists treat only men. How many people have even heard of an andrologist?)drummermikey wrote: ↑Thu Apr 02, 2026 3:17 am
One thing I cannot understand, cannot believe, is that nowhere (and correct me please if I am wrong) in the USA is there a surgeon who accepts insurance who uses robot assisted or non-robot assisted laparoscopic surgical technique on men. Really? Why? What exactly is the reason for this? Violet, please chime in. Are the sexes THAT different anatomically that it makes the surgery THAT much more difficult?!! Why should I have to go to Switzerland or Turkey for this procedure?
OP, if you're still with me after all of that, a quick search yields the following doctors that apparently offer robotic laparoscopic surgery for PN. Dr. Khashayar Shakiba in New Jersey, Dr. Ashley Gubbels at the Cleveland Clinic.
Back when I had surgery I don't think any of us had even heard of the laparscopic approach. The approaches to PNE surgery have been evolving and hopefully getting better over time. Since it's less invasive than the traditional approaches, it might make sense to give it a try if you can and if the surgeon thinks you are likely entrapped. But you may want to ask about scar tissue formation and how to prevent it if you tend to form scar tissue.drummermikey wrote: ↑Thu Apr 02, 2026 3:17 am FWIW, if I had it to do all over again, I would stay away from the transgluteal method and go with robotic assisted laparoscopic surgery, and I would make sure that I had received the surgery from the one surgeon who performed more of these exact type of surgeries per year than any other doctor. I am wishing you the best.
Violet
That's pretty incredible that we don't know of one andrologist who treats men with pudendal neuralgia. Especially given the definition of andrology in wikipedia.