horrible coccyx pain

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jamiegross
Posts: 43
Joined: Mon Feb 14, 2011 4:06 am

horrible coccyx pain

Post by jamiegross »

Does anyone else have unrelenting coccyx pain?

I just started exploring PN as the cause for my vulvodynia a few weeks ago.. last week, i started getting extreme coccyx pain that doesnt subside.. it gets worse when i sit and lay.. and is there when i stand but not AS bad.. i am just wondering if this is a symptom of PN..

also, does anyone have any advice on how to manage the pain?
Pevlic pain 8/15/10
Diagnosed with PN 2/11
Currently taking lyrica & cymbalta, PT, acupuncture
ganglion impar block -triggered lower back and sacrum pain
botox injections- caused coccxydynia
Deviated my coccyx 6 months prior- had a horrible case of posion ivy right before symptoms began, connection?
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: horrible coccyx pain

Post by HerMajesty »

Jamie,

There are I believe people on this forum who have PNE with coccyx pain, however you might also have a more fruitful search on http://www.coccyx.org . A deviated (bent) coccyx will cause a drag on the pelvic floor muscles, so while you might have PNE, your coccyx might also be the primary problem; if so the coccyx site should be helpful.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
jamiegross
Posts: 43
Joined: Mon Feb 14, 2011 4:06 am

Re: horrible coccyx pain

Post by jamiegross »

Thanks HerMajesty!
Pevlic pain 8/15/10
Diagnosed with PN 2/11
Currently taking lyrica & cymbalta, PT, acupuncture
ganglion impar block -triggered lower back and sacrum pain
botox injections- caused coccxydynia
Deviated my coccyx 6 months prior- had a horrible case of posion ivy right before symptoms began, connection?
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