Health Organization for Pudendal Education

Hi Nicola,

Sorry that you are having these difficulties. Hang in there--things do change...
I know you can't surf for now, but have you tried swimming? Crawl and backstroke (not breast stroke, which is not a good idea) have been very helpful for me. I've been swimming for 20 minutes almost every day for the last year, and it's really been great for my body (and mood!). Because there's almost no weight on the pelvis, it's a very workable form of exercise and I believe it's helped ameliorate the pain.

--Christi (Australian, but haven't lived there in a long time...)

thanks for the idea christi, I had been thinking about that, I have to drive 15 mins to our Hot salt water pool, and 25 mins to get to the physio pool.
Only driving once a week.
But really, the outdoor hot salt water pool will be great for me, I will give it a try.
Stunning location, I can watch the surfers too.


was also thinking, if all those years of sitting out the back on my surf board, I know cyclists are more likely to get PNE, but look at how we surfers (pics arent me tho, but wish I looked like that!)sit on our hard boards, sometimes for hours a day.



might have exaccerbated my issue??
I haven't surfed since new years day this year, but before that the previous year I only got out 4 times, each time I was pretty much in bed for 3-4 days. Not from fatigue but pain.

Well sitting is the big no! It won't have done the overall pain symptoms any favours, that's for sure. You do take the most beautiful pictures, I assume the bay pic is one of yours too? WOW! Wonderful place!!
I haven't visited NZ but have been badgered by my relatives for so many years, they are so proud of the beauty of the place and all outdoor, active people. My uncle lives in Whangarie , have a cuz in Auckland another Christchurch. I have determined to go once I get myself fixed.
I was clutching at straws with that link but at least you could print it out and take it into whichever doctor you are seeing, especially if he has a blank look on his/her face regarding pn.
I am going to take up swimming again too, GOT to do something! ! My local pool is right next to a lake with ducks and swans almost swimming along side. I won't put a pic up tho' no match on yours for location or photographic ability
If the Clonidine isn't having much effect there is gabapentin or pregabalin to try they can be teamed with an antidepressant like cymbalta or citalopram, but if the tramadol works (I find tramadol works well for 'fixed', not nerve pain) it can be taken too. here is a link a pregabalin
http://www.pudendalhope.org/forum/viewt ... 8&start=10 It has the UK prescription 'pathway' for drugs for nerve pain. It might help.
Good luck.

OMG, that pool looks BEAUTIFUL!! I would love to have it in MY neighbourhood. You are very lucky to have it; go for it!

I too swim everyday and it has been a real blessing. I think that my daily swims have made a difference between being merely in pain vs. being in pain AND DISABLED. Since I can't walk far or run at all or go to the gym, my swims keep my body mobile and my muscles working. They are also the best part of the day, even though I swim indoors at the local YMCA! What I would give to have a pool like yours!