Health Organization for Pudendal Education

Violet M wrote: ↑Tue Jan 24, 2017 5:50 am That's unfortunate that they are denying you care. I wonder if it would do any good to write a letter explaining your situation and that your appointment was canceled due to an incorrect assumption that you have a spinal stimulator when you actually don't.

It's OK to vent here and get some of your frustration out. Many of us have had similar experiences so we know where you are coming from, but if you do write a letter make sure it is extremely respectful because it will go much farther that way. I know it's annoying but you have to play the game. And you can't make any threats of suicide because as health care professionals they cannot provide certain drugs to someone who has suicide ideas because that would make them liable. Unfortunately, providers have to guard themselves against malpractice and they have to follow the recommended protocol. So while they may seem uncaring, they are pulled in two directions -- that of wanting to help the patient vs. what their protocol allows.

If you are suicidal please seek professional help from someone trained to help you deal with those thoughts. If you are just venting and need a listening ear, we understand. I hope you will stop and think about the possibility of a good life if you get the right treatments and hang in there to keep fighting for it.

Violet

FinalCountdown wrote: ↑Thu Jan 11, 2024 4:52 am Hi Violet, and thanks for your (re-)welcome. I had my surgery with Dr. Hibner in Sep, 2022. I’m happy to answer anyone’s questions, as I feel an almost urgent sense of obligation to people suffering from this horrible condition. I also feel like climbing onto the tops of skyscrapers, and throwing lightning bolts down upon the entire medical community, Zeus-style.

If you give me enough time, I’ll also write a more detailed report, but I’ve always been better at answering questions than writing essays.