Health Organization for Pudendal Education

One big update because of a significant new development which brought unforeseen revelations to my condition and might lead others forward as well.

So what just happened in the past 2 weeks is that I started developing these exact same problems on the opposite (right) side. But this time it was clearly accompanied by a series of painful rashes on my buttock and little more. I've had mosquito bites and mold problems at my house recently, so at first I thought all these problems would be related to that. But I eventually visited a dermatologist anyway, and I got told that it was... herpes zoster, a.k.a. shingles. I am still skeptical, because this wasn't yet confirmed with other tests, and it looks more like run-of-the-mill folliculitis than typical shingles, but it would definitely explain a lot if this had been confirmed to be my case.

I recalled that I briefly had a reddish rash in my left groin during the initial onset of the left-side "PN", but back then I attributed that to overdoing the topical antibacterials that I initially tried for treatment. Now that the exact same issue is bothering my right side, it seems so much more clear. 20% of people statistically develop chronic pains after overcoming shingles. What if all this PN nonsense of mine had been shingles all along?

Now on the negative side, the treatment options for shingles-related neuralgia in the chronic stage are very limited. On the positive side, perhaps coincidentally or with the help of my light exercise and antioxidant stack, my left side has been slowly getting better. It's certainly much better now than the current right-side stinging, stabbing pains radiating into my genitals, which I now recall I initially had on the left side as well 2 years ago when it all started. So perhaps it'll eventually even resolve completely... even if it might have to last a few years more.

Oh no, that is tough to deal with. It's good you have some improvement but unfortunate there isn't much in the way of treatments.

Thanks for the update. It may help someone else figure out their situation. It's quite a complex puzzle figuring all of this out, isn't it?

I wish you continued healing!

Violet

Violet M wrote: ↑Wed Dec 06, 2023 6:47 am During the worst of my PN journey I had a lot of inner thigh burning pain on the right side which was my worst pain side. That pain is gone since my PNE release surgery so it must have somehow been related to the pudendal nerve. I felt like I had been hit with a baseball bat all over my lower buttock and perineum and eventually developed allodynia/burning there, but that is all gone now. The worst pain was just medial to the ischial tuberosity where the leg and perineum meet. Dr. Bautrant said the perineal branch of the PN was primarily affected in my case. Anyway, the point being is that pain can radiate significantly which makes it difficult to pinpoint the exact pain generator. But if you are having genital pain, that is one of the primary indicators that the pudendal nerve is likely involved somehow -- but how is the question.

This is from one of my previous posts about a back mouse. Dr. Antolak is a former urologist who specialized in pudendal neuralgia and PNE.

Violet M wrote: ↑Sat Feb 01, 2014 11:12 pm
According to Dr. Antolak a back mouse can be the cause of bladder pain but I don't know much about it. Seems like it would depend on where the back mouse was located. Another name is episacroiliac lipoma.

http://www.centerforurologicandpelvicpain.com/ (the information was taken from Dr. Antolak's website but this link no longer works because Dr. Antolak is now retired)

These articles indicate that a back mouse can cause urinary/sciatic pain.

http://www.ncbi.nlm.nih.gov/pubmed/2151647
http://www.ncbi.nlm.nih.gov/pubmed/3625290

So, it seems that yes, the pain from a back mouse can radiate.

Violet

I wonder if you perineal branch was trapped also.he could decompress it with his type of surgery