I contacted this company and just got a text inviting me to schedule a free consultation with the doctor. Their website says it's an IRB approval protocol, which sounds like a clinical trial.
Before scheduling the consultation, I need to do some research, so I know what questions to ask. After so many failed treatment attempts, I've been focused on getting Kaiser to approve me to see an out of network surgeon with experience performing pudendal nerve decompression surgery.
Anyone tried this therapy, or know of someone who did?
Any recommendations for what questions to ask about stem cell therapy for PN welcomed!
Here's what R3 is claiming:
https://r3stemcell.com/how-stem-cell-th ... neuralgia/
R3 Stem Cell Therapy
R3 Stem Cell Therapy
Left testicle pain since 2008. Left sciatica 2010-2012. Failed left epididectomy, orchiectomy, botox injections, nerve blocks and internal physical therapy. Genital branch of genitofemoral and perineal branch of pudendal nerve cut. L5-S1 microdiscectomy cured sciatica. Dorsal Root Ganglion nerve stimulator failed to help and was removed. I have had 4 pudendal nerve blocks, two from Dr. Poree worked for 2 hrs. The ONLY break from pain ever.
Re: R3 Stem Cell Therapy
Mesenchymal stem cells have the most evidence to support nerve regeneration, and unless things changed recently, I don't believe US clinics are allowed to use MSCs.
I've been looking at getting stem cells in Mexico but I doubt many clinics there have any experience with pudendal neuralgia. From what I can tell it's a lot of people getting injections into their shoulders, knees, and ankles.
Here is a study of MSCs being used for pelvic floor denervation (in rats) https://www.frontiersin.org/articles/10 ... 90068/full
I've been looking at getting stem cells in Mexico but I doubt many clinics there have any experience with pudendal neuralgia. From what I can tell it's a lot of people getting injections into their shoulders, knees, and ankles.
Here is a study of MSCs being used for pelvic floor denervation (in rats) https://www.frontiersin.org/articles/10 ... 90068/full
Re: R3 Stem Cell Therapy
Stem cell therapy is such a fascinating topic, especially with how it’s being explored for different conditions like nerve pain and joint issues. For knee pain specifically, it’s really interesting how the treatment focuses on reducing inflammation and promoting tissue repair, offering a potential alternative to surgery.
Here’s where I got a lot of my info on the subject—it’s definitely worth checking out if you’re curious to learn more: https://www.onlymyhealth.com/buzz/stem- ... 2977819379
Here’s where I got a lot of my info on the subject—it’s definitely worth checking out if you’re curious to learn more: https://www.onlymyhealth.com/buzz/stem- ... 2977819379
Re: R3 Stem Cell Therapy
Man, I am so sorry to hear about your journey with this. It sounds absolutely brutal. That list of treatments... wow. It takes a certain kind of strength to keep pushing for answers when you've hit so many dead ends.
I haven't personally tried R3 for PN, but I know someone who went to them for chronic back pain, and it was a total game-changer for them. They'd been through a similar list of "nope, didn't work" treatments and were feeling so hopeless. What really stuck out to them about R3 was how they didn't just rush them into a procedure. They took the time to explain EVERYTHING in a way that wasn't overly technical, just really clear and easy to understand. They talked about how the stem cells act like a kind of "super-charged first responder" crew for your body, helping calm down the angry nerves and encouraging natural healing.
They ended up going for it, and while it wasn't a snap-your-fingers cure, the improvement has been STEADY. They're back to doing things they thought were gone for good, like taking long walks. The fact that R3's protocol is IRB-approved is a big deal, too. It means it's held to a higher standard than some of the other stuff you find out there. I'd say the free consult is definitely worth your time, even if it's just to get more info. You deserve to explore every possible avenue for relief. Best of luck with it, I'm really pulling for you.
I haven't personally tried R3 for PN, but I know someone who went to them for chronic back pain, and it was a total game-changer for them. They'd been through a similar list of "nope, didn't work" treatments and were feeling so hopeless. What really stuck out to them about R3 was how they didn't just rush them into a procedure. They took the time to explain EVERYTHING in a way that wasn't overly technical, just really clear and easy to understand. They talked about how the stem cells act like a kind of "super-charged first responder" crew for your body, helping calm down the angry nerves and encouraging natural healing.
They ended up going for it, and while it wasn't a snap-your-fingers cure, the improvement has been STEADY. They're back to doing things they thought were gone for good, like taking long walks. The fact that R3's protocol is IRB-approved is a big deal, too. It means it's held to a higher standard than some of the other stuff you find out there. I'd say the free consult is definitely worth your time, even if it's just to get more info. You deserve to explore every possible avenue for relief. Best of luck with it, I'm really pulling for you.
Re: R3 Stem Cell Therapy
I tried Allograft stem cell injections and a total waste