Health Organization for Pudendal Education

Mods, several people have wondered if we would ever be able to get information from the other site. What I propose is that anybody who still has linked information in their bookmarks/favorites or browser history, add them here in this thread so that the mods can decide if there is a way to make a library of this information.

Here is something a little newer, posted by some patients of Dr. Wise. This is a very concise rendering of what was very valuable information on the previous forum. I think it's required viewing for anybody who is interested in the program, BEFORE they commit substantial finances to it.

http://www.youtube.com/watch?v=3ozT8r2FBQs

Hi Celeste

And welcome back. I am a UK member and also a member of the formum on http://www.pelvicpain.org.uk/
This is a very useful site and covers all aspects of pelvic pain and they now have a section on the forum for PN. I think the information from others on the forum will be of value to fellow suffers.

It's a shame that the past posts are not available from the PI site. I know that I would not be where I am today without the valuable posts that helped me so very much. I would have continued in the dark without knowing what was wrong with me. Let's hope that everyone invovled can find a way to resolve things so we can once again access this information. Richard if you are listening- PLEASE PLEASE can we have this information.

Cheers
Peaches

PS: Just wanted to wish everyone who has set up this site all the very best - good to see you all back again.

Hi Peaches

Good to see you here as a member.
We have already approached Judy about our website but at the moment it is not possible to put a link on her website, however as a member of that forum you can make mention of our new name and domain.
We are doing our best to get things moving here, and now with nearly 100 members we are growing all the time.

Hi Celeste
I do not have internet links but have printed off many things from the PI site. I have Welcome to Pudendal Info, Pudendal Neuralgia Symptoms, Frequently asked Questions, Anatomical Images, a statement from Dr. S.J. Antolak, Sept.2003, and an interview with Dr. Ken Renney, August, 2003 , How to explain Pudendal Neuralgia to family and friends, and a few other things. There are several pages involved in this but if the Mods would like any of it scanned and e-mailed to them I would be happy to do so.
Thanks for all you do,
Shirl

Shirl, we were able to save the website information pages like the FAQ's and anatomy page and they are already up on pudendalhope.org -- it's the forum that is missing. So if you could post the topic on how to explain pudendal neuralgia to family and friends that would be great. That was a very popular topic.

Here's a paper on the Nantes Criteria. I really like that it has a diagram of pain in the path of the pudendal nerve. It also shows where pain in the surrounding areas may be due to other nerves and lists their names. I think this is a good resource for identifying if you are on the right track.

http://andrewsdesign.ca/drupal/node/pdf ... iteria.pdf

Hi Celeste,

I think this is a real good addition .
I added it here

http://www.pudendalhope.info/node/25
I think however we should add some explanation to it

Kris

Facebook isn't a website, but they have a Pudendal Neuralgia Support group that I am a member of and there is a website
www.cafepress.com/PNESupport
It has merchandise with PNE printed on it.
Is there a reason these items are not available through this website?

Kathy

kat wrote:Facebook isn't a website, but they have a Pudendal Neuralgia Support group that I am a member of and there is a website
http://www.cafepress.com/PNESupport
It has merchandise with PNE printed on it.
Is there a reason these items are not available through this website?

Kathy

Mitch Hardesty is selling those items to collect money to start his own website. I think it's probably more appropriate that he stick to Facebook. This site is raising its own funds for its own PNE support mission. Hope this helps.