Health Organization for Pudendal Education

I have been having strange symptoms for over a year now. I get pain and burning in my butt, hamstring pain and cramping as well as lower abdominal pain and feeling sexually aroused. I also have trouble feeling as if I need to pee until my bladder is very full and sometimes I don't feel that I need to have a BM until I'm in the middle of peeing. These symptoms come and go. Could they be PN? What type of doctor diagnoses this? What test(s) should be done? I want it to stop!

I don't know if this is related or not, but my Neur. is suspecting either Sarcoidosis or MS. They found a lesion on my cervical spinal cord, granulomas and enlarged lymph nodes on my lungs and my ACE level has been high the 3 times they've checked it.

Many of your symptoms are the same as what people with PN experience but you would need to get more information before you could determine if it's PN or related to your other issues. People with MS can have some of the same symptoms as people with PN if the pudendal nerve is affected. You probably want to rule out MS first -- have you had any tests to rule out MS yet?

You can read this page to learn more about the diagnosis of PN. http://www.pudendalhope.info/node/10 The 3 T MRI may also offer some valuable information if performed by a doc who knows what to look for. Dr. Hollis Potter in NYC is considered the expert on this. A good PT who is knowledgeable about pudendal neuralgia can also help with a diagnosis. There is a list of docs and PT's on the website at www.pudendalhope.org. See the left hand menu on that page. The diagnosis of PN also depends on your symptoms and history. http://www.pudendalhope.info/node/9 Is there anything in your history that could have caused PN -- like a fall or injury?

Welcome Momof2boys From what you have said it could well be PN, you do have some classic symptoms. If the tests they are doing reveal nothing I would definitely suggest this option to your doctor, however many are not pn aware, although this is changing, slowly.
The doctor list that Violet has mentioned will be helpful and hopefully there will be someone close to you. You could always take the list of symptoms in, from the home pages, with your matching ones ticked off and see what your neuro thinks. Though obviously get the tests done as well.
Good luck and let us know what happens.
Helen

Violet M.,

The only thing I can think that could be causing it is the fact that I have to sit a lot.

It's easy to say quit sitting -- but much harder to do. The right cushion might be helpful but even that takes some trial and error.