Anti-Spasmodics
Posted: Thu Feb 02, 2012 9:46 pm
Has anyone tried anti-spasmodics for PN?
I have been investigated for 5-6 years to identify this pain in Cumbria, UK. I have seen a gynaecologist who did a vulval biopsy, a bowel specialist who did a sigmoidoscopy, a skin specialist, a urologist, who did a cystoscopy. During this time the gynae and bowel doctors denied that there was a nerve where I said the pain went but studied anatomy books and decided I was right and it was the pudendal nerve. I noticed that after I was screaming with pain, I often passed wind, so I tried taking anti-spasmodics which had been prescribed for irritable bowel but which I no longer took. I found these helped. So the doctors decided I had solved my own problem and prescribed them for me. They help a lot but don't eliminate the pain.
I now take Colofac MR capsules - (Mebverine), long acting - 4 a day - which is double the normal dose but a dose commonly used in hospitals. I also topped up with Dicycloverine (Merbentyl)during bad episodes but this has been discontinued in UK and there is nothing as effective. I have been prescribed Alverine (Spasmonal) as a replacement but it is far less effective.
I don't know whether the spasm is in the bowel and setting off the nerve pain or is on the pelvic floor, a spasm caused by the nerve, or both. Certainly, the aching pain which the spasms cause is not there unless I have a bad patch. I was interested to see that muscle spasm was listed on this website. I am so grateful to find this website and identify what I have. I have Lyme Disease and Sjorgren's syndrome (auto-immune) and have been sitting a lot for many years due to fatigue. It all adds up.
I would be interested to know if anyone else has tried anti-spasmodics. It's worth a try...
Dorothy, UK
I have been investigated for 5-6 years to identify this pain in Cumbria, UK. I have seen a gynaecologist who did a vulval biopsy, a bowel specialist who did a sigmoidoscopy, a skin specialist, a urologist, who did a cystoscopy. During this time the gynae and bowel doctors denied that there was a nerve where I said the pain went but studied anatomy books and decided I was right and it was the pudendal nerve. I noticed that after I was screaming with pain, I often passed wind, so I tried taking anti-spasmodics which had been prescribed for irritable bowel but which I no longer took. I found these helped. So the doctors decided I had solved my own problem and prescribed them for me. They help a lot but don't eliminate the pain.
I now take Colofac MR capsules - (Mebverine), long acting - 4 a day - which is double the normal dose but a dose commonly used in hospitals. I also topped up with Dicycloverine (Merbentyl)during bad episodes but this has been discontinued in UK and there is nothing as effective. I have been prescribed Alverine (Spasmonal) as a replacement but it is far less effective.
I don't know whether the spasm is in the bowel and setting off the nerve pain or is on the pelvic floor, a spasm caused by the nerve, or both. Certainly, the aching pain which the spasms cause is not there unless I have a bad patch. I was interested to see that muscle spasm was listed on this website. I am so grateful to find this website and identify what I have. I have Lyme Disease and Sjorgren's syndrome (auto-immune) and have been sitting a lot for many years due to fatigue. It all adds up.
I would be interested to know if anyone else has tried anti-spasmodics. It's worth a try...
Dorothy, UK