Health Organization for Pudendal Education

Hi ,

Upon request I have republished here the survey I did in 2006 to learn something about the possible outcomes of surgery.
I would like to stress that I'm no doctor and this survey is not a scientific paper .
It only measures how people were that were on the forum then .
This is because I found it extremely difficult to read all the stories let alone draw some conclusions on them ..

If consists of 3 files . First is the word file that describes exactly how a question was asked . This is because often the answer is a result of the kind of question you ask. I also draw some general conclusions here . Then I have summarised the results in a excel and for those who haven't got excel into a pdf as well Enjoy !!

Kris

Chris,
May I ask what kind of car seat helped you. Driving is most difficult for me and I have a lot of it to do. Thanks. Carlie

Carlie,

Kris posted that he uses a Twike and a recumbent bike.

http://www.pudendalhope.info/forum/view ... 1086#p1086
http://www.pudendalhope.info/forum/view ... seat#p1247

Thanks for sharing this. It’s interesting to see how different people approached the survey and what worked for them. I’d be curious to know if there were any clear patterns in the results, especially regarding which treatments or lifestyle changes seemed to help most.

charliehampton wrote: ↑Thu Aug 20, 2026 4:44 pm Thanks for sharing this. It’s interesting to see how different people approached the survey and what worked for them. I’d be curious to know if there were any clear patterns in the results, especially regarding which treatments or lifestyle changes seemed to help most.

You would be better off looking in the published literature, as results are very individual and you really need proper statistical rigour, which is difficult with small samples. There is also the question of what people are willing to accept before they resort to surgery. Are you considering surgery?