My very first post on my pudendal story
Posted: Mon Oct 29, 2012 8:28 pm
Hi, everyone! 
I was excessively straining while having a bowel movement that was particularly hard to pass in march of 2009. The next day, it started to feel like there was something wrong. As soon as I felt that I needed to go to the bathroom, I then realized that the sensation of needing to empty my bowels was reduced to 10% or less of the intensity that I normally felt. I waited for a few weeks to see if the numbness was just a temporary thing, but it stayed that way. I told my parents, but they didn't understand and somewhat refused to believe what I was telling them. We didn't go to the doctor, since I was too embarrassed and afraid to bug them about it. A month later, while peeing, I suddenly felt something painful in my perineal area. The pain was sharp and it was unbearable to sit down. The only relief I got was from lying down and standing up. Along with the pain, the sensation of wanting to pee was reduced to 10% or less than the normal intensity as well. I also started to notice that my genitals were becoming numb as well and the feeling of orgasm was beginning to diminish. The pain slowly vanished after a few weeks, but the numbness stayed and got worse. This was the first time something like this ever happened in my life. I googled my symptoms, but wasn't able to find anything substantial to no avail. So I decided to focus on other things first hoping that the numbness would eventually disappear and that my normal sensations would come back. But they haven't. Finally, early this year, after years of constantly checking if I was feeling even a little urge to pee or poo, I was able to find information on pudendal nerve disorders, which led me to this forum. I live in Asia and am currently asking different local physical therapists and phyiostherpists if they have any experience treating pudendal nerve disorders. Should I give pts or physios who are knowledgeable in pelvic floor disorders, but who are not pudendal specialists, a chance; or should I go for treatment in the US, Australia, etc. Instead? I can travel to the US freely, if that helps. Are there any forum members who have similar symptoms/experiences? Thanks for reading my first post!
I was excessively straining while having a bowel movement that was particularly hard to pass in march of 2009. The next day, it started to feel like there was something wrong. As soon as I felt that I needed to go to the bathroom, I then realized that the sensation of needing to empty my bowels was reduced to 10% or less of the intensity that I normally felt. I waited for a few weeks to see if the numbness was just a temporary thing, but it stayed that way. I told my parents, but they didn't understand and somewhat refused to believe what I was telling them. We didn't go to the doctor, since I was too embarrassed and afraid to bug them about it. A month later, while peeing, I suddenly felt something painful in my perineal area. The pain was sharp and it was unbearable to sit down. The only relief I got was from lying down and standing up. Along with the pain, the sensation of wanting to pee was reduced to 10% or less than the normal intensity as well. I also started to notice that my genitals were becoming numb as well and the feeling of orgasm was beginning to diminish. The pain slowly vanished after a few weeks, but the numbness stayed and got worse. This was the first time something like this ever happened in my life. I googled my symptoms, but wasn't able to find anything substantial to no avail. So I decided to focus on other things first hoping that the numbness would eventually disappear and that my normal sensations would come back. But they haven't. Finally, early this year, after years of constantly checking if I was feeling even a little urge to pee or poo, I was able to find information on pudendal nerve disorders, which led me to this forum. I live in Asia and am currently asking different local physical therapists and phyiostherpists if they have any experience treating pudendal nerve disorders. Should I give pts or physios who are knowledgeable in pelvic floor disorders, but who are not pudendal specialists, a chance; or should I go for treatment in the US, Australia, etc. Instead? I can travel to the US freely, if that helps. Are there any forum members who have similar symptoms/experiences? Thanks for reading my first post!