Health Organization for Pudendal Education

How many of you suffer with delayed pain? I often do things and feel no pain, but it hits me a day or two later....sometimes sooner.

Yes, I'm in exactly the same position. The pain can be delayed for days. It makes pacing difficult. Stephanie

I get delayed pain too. I can opperate on a highish pain scale so it often looks like I am fully able to do almost everything, and, well I can, especially in the morning but I pay big time later. Usually with me it is later that same day, although then it often takes a couple of days to recover. I find that 'feet up' rests help through the day.
My theory is that, in very simple terms, the nerve moves within it's protective sheath to some extent, so any slight movement can relieve pressure on an exact spot and may then put pressure on another spot (or not). Eventually, the whole section of the irritated, entrapped nerve has had 'enough' and protests, but that can take time as the irritation to the whole section builds. I can often feel the pain whilst 'doing stuff' but it is not enough to stop me. No catch of breath or huge grimaces (like REAL pain ) I soldier on and it all catches up with me that afternoon/evening then the REAL pain starts. It makes applying for any benifit implausable at best. I literally can not walk before the days end but catch me in the morning after a few restful days and I can limp along quite fast, even do a quick shimmy when required! Not much call tho' these days ~shrugs~
Nerve pain is a very strange thing.Complicated, and as we all know difficult to treat. . . . I think I need to find out more about it. If anyone who has any medical knowledge can offer a propper reason for delayed pain that would be great.
Helen

I also experience delayed pain. My understanding is this is typical for this condition.

Merrie

ME! I can drive all day and be fine, but when I get where I'm going I regret it!

Add me to the list too. I often fool myself into thinking I can do stuff and then I pay for it later...BIG TIME! Onset of flare can come on the next day and then increase even more during the following days. Major bummer.

Emily B.

Me, too!

helenlegs 11 wrote: soldier on and it all catches up with me that afternoon/evening then the REAL pain starts. It makes applying for any benifit implausable at best.

It never fails to amaze how utterly DISABLED I am late afternoon and throughout the evening! I'm really sorry this happens to you guys, too, but am somewhat relieved that I'm not the only one!

Me too.

I always have delayed pain but it's getting better as time goes on. It used to take a whole 2 weeks for my pain flares to come down after physio. and after being examined vaginally. I stopped doing internal physio. because of this.
Now that I'm 3 years post PNE release I don't get major pain flares any more. I do however have a pain flare after sex and if I do too much housework, especially when lifting or shifting anything heavy. We tend to do more when we feel good but there's one thing we all agree on and that's the 'after effect' Sometimes it's hours and sometimes it's the next day. Lately i've noticed that I recover much quicker than I did before. One or two days of pain flare but certainly not weeks like I did before.

I have this and have been told it is normal for PN. It takes time for the nerves to get upset since it takes time for muscles to get engorged with working out or with movement so that is what I feel it is.
Sorry you have this too, but I believe it is normal for us.

Loves

I think often I can get involved in doing something to the degree that I disregard or ignore the soft signals my body sends to let me know a bigger signal is to follow. You know engaged in something intellectually, physically even, instead of just waiting for the next shoe to fall.

I often pay later, in spades. Remember, PN to some degree is an activity based syndrome. You activate, you pay. As anyone who has recently dealt with a bout of constipation will affirm.

Rick