newbie, long time CPPS sufferer

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
Post Reply
claro80
Posts: 2
Joined: Wed Jun 17, 2015 12:33 am

newbie, long time CPPS sufferer

Post by claro80 »

Hi to everybody,

i'm long time sufferer of CPPS, i'm here to see if there is some new treatment or what are the best options

i'm having a good improvement with stretching, but i dunno if lasts
(one day no stretch = 2 steps back)

thanks
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: newbie, long time CPPS sufferer

Post by nyt »

Welcome to the forum. Sorry you are a long time suffer of CPPS.

You might want to look at Restorative Exercise. The blog is run by Katy Bowman, she has several videos and books you can purchase. I have not purchased any of her videos but have read her first book that I got through the library. She also has stuff on Youtube. She has a facebook page called Aligned and Well. There is also a Facebook group that uses her Restorative Exercise for pelvic pain. She uses simple stretches and is focused on proper body alignment and mechanics to treat pain.

A good physical therapist is like gold who can help with the appropriate stretches and strengthening exercises based on your specific needs.

Have you read "Heal Pelvic Pain" or "Headache In The Pelvis." Even though you are new to the group you might already be aware of these books since you have had CPPS.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
claro80
Posts: 2
Joined: Wed Jun 17, 2015 12:33 am

Re: newbie, long time CPPS sufferer

Post by claro80 »

thank you for your advices nyt

i'm aware of the two books you mentioned, i already have one and i know the second



i'm still searching a good physiotherapist expert in pelvic pain in my country, but is hard to find
in these yrs i consulted many urologists but all of them had poor solution to my condition and often they gave me wrong diagnoses

did someone recover by stretching and massage?

i'm growing frustrated/depressed because after one year of religiously stretching routines i got a lot of flexibility and less pelvic tension than beginning, but no way to get rid of it once and for all
Post Reply

Return to “WELCOME CENTER”