Diagnosed last week 2 years of hell.
Posted: Tue Aug 02, 2016 6:02 pm
I am a 52 year old mother of 4 with 6 grandchildren and I was just diagnosed a week ago. I have been suffering for 2 years. It came on suddenly after a long plane ride from New York to my home in Utah. I was treated for bladder infection, uti, yeast. I tried so my things. I finally saw an ob, who found nothing and sent me to a urologist . Come to find out she wasn't an ob,she was a midwife and could not diagnose any of these problems. Finally got into a true ob. He said my hormone levels were low and put me on Premarin for 4 months, 200.00 dollars a tube. I only felt relief using 2 times a month. I finally gave up on him and tried hormonal therapy. I must say that first year was hell. I never went any where, tried every kind of underwear. I finally wore none. Rode a motorcycle occasionally ( only for him) if I took high doses of hydrcodeine? Still the pain was intense. We had no sexuall intercourse that year. My sweet husband was so kind. I never once felt he was or would cheat on me. We just celebrated our 32nd anniversary .I was tending my 3 year old grandson every day. I think he helped keep me alive. I was also taking a small dose of amitriptiline for sleep. My mom finally suggest I try tramadol. I took a few from her and...my life was back. In just a day or two. I was still in pain, but usually 1 a day would work. I sat back and watched to see if the hormonal therapy would help. It did not. It began after 8 months to not work as well. I couldn't exercise any kind of moisture seemed to push me through the roof. Sex was ok. I finally called a urogynocologist ( I had a mesh bladder repair in 2011). I thought something could be wrong with that. She put me on the one thing that hadn't been tried. A steroid cream. And told me if it didn't work in one month to go see this Dr Sharp at the University of Utah medical center. He specialized in Pelvic pain. Finally got in to see him after a month. He checked my posture, did an exam. Poked around with a small toothpick thing,and took a sample under a microscope . He diagnosed me and said...no more sitting.. muscles tight, but he thought it was just from the pain. He started me on gabapentin and told me to continue with the amitriptiline . I have a very religious background. I truly trust God. So I have always had hope. Just discouraged. I love motorcycle riding with my husband. We have a trip to Hawaii planned in sept. 5 + hours. And I attend church weekly for 3 hours. How do I do all this. How do I live like this. My daughter in law gave me a nursing pillow to use. Is this going to be permanent? Have I done too much damage? Will I make it worse if I ride with my husband. I have so many questions. I guess only time will tell. Sorry, this is really the first time I have told my story.
