Hello forum, I have had recent onset of symptoms 3 months ago, after going to the gym whilst using my melt prescribed orthotcs - which changed my gait way too much.
It started with urinary frequency and crawling sensations , which progressed to shooting pains and foreign object sensation in rectum.
Now the foreign body sensation has diminshed, crawling sensations lessened and shooting pains lessened. But now I have a deep ache in my rectum . Is this typical of pne? I have been prescribed neurontin and elavil, but they make me so drowsy, so I have suspended taking them for now. I have seen a surgeon and a pain management specialist, and they want to get me on the nerve blocks/surgery program asap. I hoping to see if I resolves on it's own first. I'm only 28 and the thought of surgery is tough to stomach.
Does anyone have any thoughts?
Advice required
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HerMajesty
- Posts: 1134
- Joined: Sat Sep 18, 2010 12:41 am
- Location: North Las Vegas, Nevada
Re: Advice required
A subset of the Pudendal neuralgia population has pelvic joint dysfunction; this was my primary issue. The type of onset you had makes this seem a likely cause, since I got my pelvic injury from a gait problem too. This does not require surgery, it requires correction of the pelvic alignment. I don't know if this is your problem just think it is likely due to the mechanism of injury. Search terms: Pelvic joint dysfunction, sacroiliac joint dysfunction, SIJ, SIJD, upslip ilium, downslip ilium, sacral torsion...all I can think of for now.
The action to take to see if this is the source of your pudendal symptoms, is to see a PT Manual Therapist, Pelvic Floor PT who has experience in diagnosing and treating pelvic joint dysfunction, or chiropractor. You need a hands-on assessment to see if your pelvis is out of alignment, as it will not generally show up on imaging tests. This is because an imaging test is a still picture taken in a neutral position, whereas joint dysfunction is a dynamic (movement) issue most visible in an end range position such as full flexion or full extension. For that reason an MD will almost definitely not be able to diagnose it, although a D.O. might be able to.
Something to rule out before surgery.
The action to take to see if this is the source of your pudendal symptoms, is to see a PT Manual Therapist, Pelvic Floor PT who has experience in diagnosing and treating pelvic joint dysfunction, or chiropractor. You need a hands-on assessment to see if your pelvis is out of alignment, as it will not generally show up on imaging tests. This is because an imaging test is a still picture taken in a neutral position, whereas joint dysfunction is a dynamic (movement) issue most visible in an end range position such as full flexion or full extension. For that reason an MD will almost definitely not be able to diagnose it, although a D.O. might be able to.
Something to rule out before surgery.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.