Health Organization for Pudendal Education

Hi, can anyone tell me the standard time frame around the diff stages of pudendal neuralgia. Do most people suffer in one area to begin and leads to other areas and if so over what time? I know we are all diff but general info would be helpful. Thanks

Chris,
I don't know what's standard, but I can share my journey.
2008--I had only provoked vulvar pain (sex, tampons, tight clothing)
2009--low level bladder spasms, some continual burning, some rectal discomfort. None of this impacted my daily life.
late 2009--pain with sitting, all the above symptoms got worse, impacted quality of life and daily living
throughout 2010--experienced all PN symptoms at one stage or another and at varying levels

BUT, and that's a big BUT--since initial onset in late 2009, my pain has not worsened. It has simply moved and changed.

Chris, there isn't really a standard time frame because it may depend on what your activities are. Some people can live with minor symptoms the rest of their life but if you continue to exercise like I did your problems could progress rapidly. For me it took about a year and a half to go from twinges/aches to full blown PNE.

I didn't get diagnosed until it got very bad because I have neuropathic itch so I spent a lot of wasted time with dermatologists, allergists, nutritionists. Time frame: Neuropathy in toes / feet 2004, neuropathy in pubic area 2006, neuropathy in anal area 2008, severe neurogenic bladder leading to near total disability 2009. Nothing was a major event, all isues started mildly and insiduously and grew more and more intense over time.

Thanks everyone for your experiences, really helpful. Unsure if got PN or not or maybe in denial but after going through a sphincterotomy that i didnt need as still in pain maybe its time to open my eyes a little and accept more than just a possibility.