Hi everyone, I was thinking of starting a Support Video Conference Group on Skype (which lets you do online video group chats) at a specific time for anybody who would like support and to discuss any PNE subjects or questions with multiple people at one time together, like maybe once or twice a month for about 15 to 30 minutes. We could all discuss any questions related to PNE. Anybody is welcome to join the conference. If you are interested in joining my Support Skype Group, please private message me and let me know when is a good time for you to do this and I will see what the most popular times and Days are for everybody. I know that some of us live on the east coast and some west coast and some in between, so I will just say anytime or day is good for me, but I will start off by saying my preference would be Thursday Nights at 9 p.m. Eastern Time or Saturdays at 1 p.m. Eastern time or 9 p.m eastern time. Everyone interested in joining please let me know which time works best for you, your skype user id, via private message and after I get at least a few people who are interested I will post the day and time on this thread that the Skype Chat will start at. If any of you do not have Skype, you can go to http://www.skype.com and download it for free. You also do not have to use a web camera to use it, because you can just talk and not use the video part of it. Any thoughts ideas are welcome. Take care. There's Always Hope.
Shawn
North Carolina
Does Anybody Want to Join My PNE Support Group on Skype?
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shawnmellis
- Posts: 227
- Joined: Sat Dec 04, 2010 8:42 pm
- Location: Concord, NC USA
- Contact:
Does Anybody Want to Join My PNE Support Group on Skype?
Bringing Help Awareness Education to Patients & Doctors about PNE through Videos at http://www.YouTube.com/PudendalNerve & PudendalHope.com Please tell Dr. Oz to cover topic of PNE by going to http://www.doctoroz.com/contact Started 1/2010. Initial urinary tract infection in 1/2010. Medication: Diazepam, Tramadol. 4 nerve blocks. physical reinjury 8/2010. 7/2011 Potter MRI Varices dorsal branch 8/23/11 Diagnosis Entrapment of Dorsal Branch Dr. Lee Dellon There's Always Hope!
Re: Does Anybody Want to Join My PNE Support Group on Skype?
im interested.
skype name nic-reeves
I am pacific time
Can talk any time, as I don't have a life
skype name nic-reeves
I am pacific time
Can talk any time, as I don't have a life
Chronic Pain pudendal area for 3 years, after a hard jolt to right side.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
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shawnmellis
- Posts: 227
- Joined: Sat Dec 04, 2010 8:42 pm
- Location: Concord, NC USA
- Contact:
Re: Does Anybody Want to Join My PNE Support Group on Skype?
I will add you to the group Our first meeting is Tomorrow Thursday at 9 p.m. Eastern time or 6 p.m. Pacific
anybody else interested can pm me their user id Our first meeting we will be briefly talking about ourselves and we will also talk about how to bring awareness to PNE. After a little bit, the guys will leave the chat and the girls can continue chatting about any PNE female problems they are more comfortable talking about with a woman about. You can also join the facebook group Pudendal Neuralgia Support by going to http://www.facebook.com/groups/103838315764/ and requesting to be added, which there is support through instant chatting there. I am on that Facebook group also
Shawn
anybody else interested can pm me their user id Our first meeting we will be briefly talking about ourselves and we will also talk about how to bring awareness to PNE. After a little bit, the guys will leave the chat and the girls can continue chatting about any PNE female problems they are more comfortable talking about with a woman about. You can also join the facebook group Pudendal Neuralgia Support by going to http://www.facebook.com/groups/103838315764/ and requesting to be added, which there is support through instant chatting there. I am on that Facebook group also
Shawn
Bringing Help Awareness Education to Patients & Doctors about PNE through Videos at http://www.YouTube.com/PudendalNerve & PudendalHope.com Please tell Dr. Oz to cover topic of PNE by going to http://www.doctoroz.com/contact Started 1/2010. Initial urinary tract infection in 1/2010. Medication: Diazepam, Tramadol. 4 nerve blocks. physical reinjury 8/2010. 7/2011 Potter MRI Varices dorsal branch 8/23/11 Diagnosis Entrapment of Dorsal Branch Dr. Lee Dellon There's Always Hope!
Re: Does Anybody Want to Join My PNE Support Group on Skype?
I accepted your skype invite, and am waiting online, you didn't answer me call or requests to check about time zones.
Is this still happening?
Is this still happening?
Chronic Pain pudendal area for 3 years, after a hard jolt to right side.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.