10 Day Outpatient Ketamine

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nyt
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Joined: Sun Oct 31, 2010 3:24 am

Re: 10 Day Outpatient Ketamine

Post by nyt »

My insurance covers. I do have a copay but I do with all my prescriptions. You are right in that there isn't much info on the use of Namenda for pain. It is an off label use for pain because it blocks the NMDA receptor just like Ketamine does. Can't say at this point that I think it makes any difference in my pain but it does help my sleep. It still bothers my vision and about the time I'm ready for the next dose my vision is better. Also, the last 2 day just have felt generally "yucky." I'm hoping with time that the side effects will lesson.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
kathyd
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Joined: Mon Dec 20, 2010 8:48 pm

Re: 10 Day Outpatient Ketamine

Post by kathyd »

Hi NYT
Thanks for the info on ketamine treatment. I hope you will getting some benefit from it in your pelvic pain.
I spoke with my pelvic gyn doc today briefly.. and told her about the 10 program you described. I added that the way it was tried on me by the pain mgmt guy in our area was probably not near enough to determine if it would help me.

I will print out your description. What makes most sense to me is the "daily infustion" part you mentioned. The CNS needs to be in a relaxed state long enough on a regular basis to learn a new way to be, and un-learn the fear,pain fear vicious cycle.
I hope you benefit from your procedure. And thanks again for all the info. I would probably check into the Rochester program as it's closer geographically
Best wishes to you!.
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Violet M
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Re: 10 Day Outpatient Ketamine

Post by Violet M »

NYT, it sounds pretty difficult especially with the nausea you experience during the treatment. Just wanted you to know I think you have a lot of courage to try these treatments and I wish you all the best with them.

Violet M
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
donstore
Posts: 463
Joined: Mon Nov 08, 2010 6:13 am
Location: San Francisco

Re: 10 Day Outpatient Ketamine

Post by donstore »

nyt,
Thanks for the invaluable info on your experience with ketamine treatments. Wishing you all the best in the new year.

Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
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Amanda
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Location: Dublin, Ireland
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Re: 10 Day Outpatient Ketamine

Post by Amanda »

nyt

Well done for getting through a 10 day Ketamine infusion.
I had this treatment twice in Nantes many years ago, it is a very strange drug to tolerate....great at the time for relieving pain but not so good on the mind...i always remember that every sound was accelerated hugely...my iPod was like having an orchestra in my ears and even moving the sheet was sooo noisy.
I was lucky as I didnt experience the nausea that you have described...however i do remember having huge constipation problems afterwards which took ages to resolve.
Once i finished the infusions i was nearly screaming with pain as the drug effects wore off very quickly once i was discharged from the hospital.
I never felt any long lasting positive effects from this treatment which was the goal initially as I had a diagnosis of CRPS.
Many years later now i have had to manage my CRPS symptoms with care and heat/ice and my Stimulator has helped deal with pelvic pain in a minor way.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
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