Looking for PN/PNE help near Chicago.

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
Post Reply
Hotseat
Posts: 1
Joined: Fri Aug 24, 2012 12:33 am

Looking for PN/PNE help near Chicago.

Post by Hotseat »

Hi everybody!
I have been having many PN/PNE symptoms for about a year and a half, but, after reading some of the posts here, my situation is pretty mild compared to some of you. I don't know how you carry on...
Anyway, after reading about PN/PNE, I think I have been having trouble with it for some time, including impotence, loss of sensation, anal pain, itching, burning feet, and scrotal/perenial pain. Only in the last year and a half has it become debilitating, to the extent that I have stopped exercising, which I really regret.
I am pretty sure I have a PN/PNE issue, as I have been an avid cyclist most of my life, and lift weights also, I think it has finally caught up to me!
Does anyone have any experience with a doctor in the Chicago area? I'm hoping that there is at least one doctor who knows what PN/PNE is, or better yet, one that can figure out if I DO have it, and how to treat it.
Thank you, and keep on keepin' on!
User avatar
Violet M
Posts: 7183
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: Looking for PN/PNE help near Chicago.

Post by Violet M »

It's really hard when you get to the point where you have to quit exercising. I remember reaching that point and it was so difficult to accept.

You might want to check out some of the PT's in the area. Since your case is what you consider mild at this point, hopefully, a conservative approach might work for you. You can go to the homepage and click on "list of PT's" on the left-hand menu. Also, the PT's might be able to direct you to the best doc in the area.

I don't know of any PNE surgeons in Chicagoland but it seems like there should be some who are experienced at nerve blocks.

Take care,

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: Looking for PN/PNE help near Chicago.

Post by helenlegs 11 »

Hi hotseat, welcome :)
Sorry I can't give you any help with regard to help in your local area (British) but I do hope that you find what is needed sooner rather than later.
Glad you have found this site.
Take care
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Post Reply

Return to “WELCOME CENTER”