newbie
Re: newbie
newbie, I have a synovial cyst on L3-L4 and disc problems and suddenly developed PN a few months ago so I wonder about a connection too altho docs say no. Violet u mentioned a doctor I'm seeing too in Rochester. R u also in western NY and is there any kind of support group? I'm new to this site and horrible condition. Good luck to all. Judy C
Re: newbie
Judy, sorry you have had to join our ranks here. No, I'm from the Western US so I don't know of a support group in your area. Maybe a pelvic floor PT near you might know of one?
Violet
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: newbie
Thank you Violet, I was lucky enough to find a good one just 45 miles away! Maybe things are looking up.
Re: newbie
That's great, Judy! Let us know how it goes. 
Violet
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: newbie
Hi Judy,
Good to know that you have already had a diagnosis. I hope the PT works. as Violet says let us know.
Good luck.
Helen
Good to know that you have already had a diagnosis. I hope the PT works. as Violet says let us know.
Good luck.
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.