18 mons of pain seems to be going away
18 mons of pain seems to be going away
Ok..it has been about a weekand a half and my pain has become sometimes not even noticeable! Out of the blue and for no reason that I can think of. (except high doses of magnesim) I am still on my meds of course. the pain can still be there, but it is more manageable and only seems to show up if I sit on a too hard chair for awhile, or after a bm. And it is dissapating much sooner than it was. I don't want to speak too soon. Will it come back? the deep pain upon intercourse is stil there though. And the clitois still doesn't really work. I want to be so hopeful.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: 18 mons of pain seems to be going away
I hope this better situation lasts or better still, improves further chex. Good news 
Do you think that now you have maybe a better handle on what sets the pain off you are managing those things better? Stupid question really I mean who wouldn't!
It may also have something to do with the way the brain works with pain signals too. This is where all of the 'newer' pain management stuff is coming from these days too http://tedxtalks.ted.com/video/TEDx-Ade ... -Moseley-W http://www.youtube.com/watch?hl=en&v=4b8oB757DKc&gl=US
I love the first vid for someone SO clever, he is so funny.
I am in no way saying that you haven't got a nerve issue, we all have here. However,you can apply Lorrimers 'danger on the outside of your left leg on the skin. . . . .mate' (you need to watch the vid of course) to all pain signals.
The fact that you have had these same pains for a while, has very probably allowed your brain to process the pain signals as non life threatening now. You have been here so many times before and haven't been close to a really dangerous situation in a fight or flight response because of this pain, so it dampens those pain signals down. This calming down of how your brain is reacting to the pain signals and your own better coping and lifestyle management strategies, may be combining to make things easier. You are obviously not someone who is susceptible to allowing those pain signals to increase as can very often be the case.
Our problem isn't the same as tissue damage that must get better within 3-6 months, as the nerve tissue is involved now and if the problem is actual entrapment, the brain can't miraculously dissolve any scar tissue or ligament or whatever is causing this problem. I would LOVE someone to make a vid to explain that one.
I think all the brain can do in our cases until the nerve issue is sorted is help turn the volume down. Thankfully you seem to have managed this
This would be true of PN from tight pelvic floor muscles as well as actual PNE.
With all of this 'newer' cognitive pain approach, everyone should have access to a multi disciplined approach to treatments, although I would still maintain that it would be the muscle tension release from good physiotherapy that will actually 'cure' a tight pelvic floor PN sufferer for instance, but cognitive therapies will definitely help along the way.
Take care,
Helen
Do you think that now you have maybe a better handle on what sets the pain off you are managing those things better? Stupid question really I mean who wouldn't!
It may also have something to do with the way the brain works with pain signals too. This is where all of the 'newer' pain management stuff is coming from these days too http://tedxtalks.ted.com/video/TEDx-Ade ... -Moseley-W http://www.youtube.com/watch?hl=en&v=4b8oB757DKc&gl=US
I love the first vid
for someone SO clever, he is so funny.I am in no way saying that you haven't got a nerve issue, we all have here. However,you can apply Lorrimers 'danger on the outside of your left leg on the skin. . . . .mate' (you need to watch the vid of course) to all pain signals.
The fact that you have had these same pains for a while, has very probably allowed your brain to process the pain signals as non life threatening now. You have been here so many times before and haven't been close to a really dangerous situation in a fight or flight response because of this pain, so it dampens those pain signals down. This calming down of how your brain is reacting to the pain signals and your own better coping and lifestyle management strategies, may be combining to make things easier. You are obviously not someone who is susceptible to allowing those pain signals to increase as can very often be the case.
Our problem isn't the same as tissue damage that must get better within 3-6 months, as the nerve tissue is involved now and if the problem is actual entrapment, the brain can't miraculously dissolve any scar tissue or ligament or whatever is causing this problem. I would LOVE someone to make a vid to explain that one.
I think all the brain can do in our cases until the nerve issue is sorted is help turn the volume down. Thankfully you seem to have managed this
This would be true of PN from tight pelvic floor muscles as well as actual PNE.
With all of this 'newer' cognitive pain approach, everyone should have access to a multi disciplined approach to treatments, although I would still maintain that it would be the muscle tension release from good physiotherapy that will actually 'cure' a tight pelvic floor PN sufferer for instance, but cognitive therapies will definitely help along the way.
Take care,
Helen
Last edited by helenlegs 11 on Sat Sep 08, 2012 11:21 pm, edited 3 times in total.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: 18 mons of pain seems to be going away
Crap. it's back. Not sure why it felt better and not sure why it is back. Do hormones ever have anything to do with this?
Re: 18 mons of pain seems to be going away
What form of magnesium do you take, and how much?
Re: 18 mons of pain seems to be going away
Yes, they did for me. Certain times of the month were worse.Chex wrote:Crap. it's back. Not sure why it felt better and not sure why it is back. Do hormones ever have anything to do with this?
Sorry it came back.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: 18 mons of pain seems to be going away
I take 2 300mg magnesium citrate and oxide combination capsule. I read somewhere that it can help nerves heal and relax muscles.