Delayed Pain
Delayed Pain
How many of you suffer with delayed pain? I often do things and feel no pain, but it hits me a day or two later....sometimes sooner.
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
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Stephanie P
- Posts: 74
- Joined: Mon Oct 11, 2010 10:06 am
Re: Delayed Pain
Yes, I'm in exactly the same position. The pain can be delayed for days. It makes pacing difficult. Stephanie
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Delayed Pain
I get delayed pain too. I can opperate on a highish pain scale so it often looks like I am fully able to do almost everything, and, well I can, especially in the morning but I pay big time later. Usually with me it is later that same day, although then it often takes a couple of days to recover. I find that 'feet up' rests help through the day.
My theory is that, in very simple terms, the nerve moves within it's protective sheath to some extent, so any slight movement can relieve pressure on an exact spot and may then put pressure on another spot (or not). Eventually, the whole section of the irritated, entrapped nerve has had 'enough' and protests, but that can take time as the irritation to the whole section builds. I can often feel the pain whilst 'doing stuff' but it is not enough to stop me. No catch of breath or huge grimaces (like REAL pain
) I soldier on and it all catches up with me that afternoon/evening then the REAL pain starts. It makes applying for any benifit implausable at best. I literally can not walk before the days end but catch me in the morning after a few restful days and I can limp along quite fast, even do a quick shimmy when required! Not much call tho' these days ~shrugs~
Nerve pain is a very strange thing.Complicated, and as we all know difficult to treat. . . . I think I need to find out more about it. If anyone who has any medical knowledge can offer a propper reason for delayed pain that would be great.
Helen
My theory is that, in very simple terms, the nerve moves within it's protective sheath to some extent, so any slight movement can relieve pressure on an exact spot and may then put pressure on another spot (or not). Eventually, the whole section of the irritated, entrapped nerve has had 'enough' and protests, but that can take time as the irritation to the whole section builds. I can often feel the pain whilst 'doing stuff' but it is not enough to stop me. No catch of breath or huge grimaces (like REAL pain
) I soldier on and it all catches up with me that afternoon/evening then the REAL pain starts. It makes applying for any benifit implausable at best. I literally can not walk before the days end but catch me in the morning after a few restful days and I can limp along quite fast, even do a quick shimmy when required! Not much call tho' these days ~shrugs~Nerve pain is a very strange thing.Complicated, and as we all know difficult to treat. . . . I think I need to find out more about it. If anyone who has any medical knowledge can offer a propper reason for delayed pain that would be great.
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Delayed Pain
I also experience delayed pain. My understanding is this is typical for this condition.
Merrie
Merrie
PNE onset 9/2008
Weekly pelvic floor PT since 9/2008
Numerous nerve blocks 2008 - current (pn, s2-s4 epidurals, pelvic/lumbar/splanchnic sympathetic)
PRF s2,3,4 May 2009
Numerous hip injections and trigger point injections
Numerous rounds of botox (first 12/08 - most recent 5/13)
Hibner consult / Kalinkin MRI 11/10
PT with PHRC in May 2013
Weekly pelvic floor PT since 9/2008
Numerous nerve blocks 2008 - current (pn, s2-s4 epidurals, pelvic/lumbar/splanchnic sympathetic)
PRF s2,3,4 May 2009
Numerous hip injections and trigger point injections
Numerous rounds of botox (first 12/08 - most recent 5/13)
Hibner consult / Kalinkin MRI 11/10
PT with PHRC in May 2013
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HerMajesty
- Posts: 1134
- Joined: Sat Sep 18, 2010 12:41 am
- Location: North Las Vegas, Nevada
Re: Delayed Pain
ME! I can drive all day and be fine, but when I get where I'm going I regret it!
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Re: Delayed Pain
Add me to the list too. I often fool myself into thinking I can do stuff and then I pay for it later...BIG TIME! Onset of flare can come on the next day and then increase even more during the following days. Major bummer.
Emily B.
Emily B.
Re: Delayed Pain
Me, too!
It never fails to amaze how utterly DISABLED I am late afternoon and throughout the evening! I'm really sorry this happens to you guys, too, but am somewhat relieved that I'm not the only one!helenlegs 11 wrote: soldier on and it all catches up with me that afternoon/evening then the REAL pain starts. It makes applying for any benifit implausable at best.
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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catherine a
- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: Delayed Pain
Me too.
I always have delayed pain but it's getting better as time goes on. It used to take a whole 2 weeks for my pain flares to come down after physio. and after being examined vaginally. I stopped doing internal physio. because of this.
Now that I'm 3 years post PNE release I don't get major pain flares any more. I do however have a pain flare after sex and if I do too much housework, especially when lifting or shifting anything heavy. We tend to do more when we feel good but there's one thing we all agree on and that's the 'after effect' Sometimes it's hours and sometimes it's the next day. Lately i've noticed that I recover much quicker than I did before. One or two days of pain flare but certainly not weeks like I did before.
I always have delayed pain but it's getting better as time goes on. It used to take a whole 2 weeks for my pain flares to come down after physio. and after being examined vaginally. I stopped doing internal physio. because of this.
Now that I'm 3 years post PNE release I don't get major pain flares any more. I do however have a pain flare after sex and if I do too much housework, especially when lifting or shifting anything heavy. We tend to do more when we feel good but there's one thing we all agree on and that's the 'after effect' Sometimes it's hours and sometimes it's the next day. Lately i've noticed that I recover much quicker than I did before. One or two days of pain flare but certainly not weeks like I did before.
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
Re: Delayed Pain
I have this and have been told it is normal for PN. It takes time for the nerves to get upset since it takes time for muscles to get engorged with working out or with movement so that is what I feel it is.
Sorry you have this too, but I believe it is normal for us.
Loves
Sorry you have this too, but I believe it is normal for us.
Loves
Born with pudendal and obtorator neuralgia. 32 years of being misdiagnosed.
Surgery with Conway 7/14/10. Internal burning cured!
Currently in PT for many pelvic floor issues due to having PN for so long.
Surgery with Conway 7/14/10. Internal burning cured!
Currently in PT for many pelvic floor issues due to having PN for so long.
Re: Delayed Pain
I think often I can get involved in doing something to the degree that I disregard or ignore the soft signals my body sends to let me know a bigger signal is to follow. You know engaged in something intellectually, physically even, instead of just waiting for the next shoe to fall.
I often pay later, in spades. Remember, PN to some degree is an activity based syndrome. You activate, you pay. As anyone who has recently dealt with a bout of constipation will affirm.
Rick
I often pay later, in spades. Remember, PN to some degree is an activity based syndrome. You activate, you pay. As anyone who has recently dealt with a bout of constipation will affirm.
Rick