Recovered newbie :)

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
Stevieeee
Posts: 5
Joined: Tue Dec 16, 2014 3:50 am

Recovered newbie :)

Post by Stevieeee »

Hey guys. I am a regular poster on hard flaccid and go by the username of Steviee. I’ve been plagued with hard flaccid and pudendal nerve entrapment/cpps. But it’s now a thing of the past. It all started about a year ago in January last year. Like everyone I freaked out. Googled it for 2 days straight looking for the miracle cure. I was stretching my pelvic floor and sticking my finger in my arse ( not fun). Anxiety took over. I did n’t ever want to leave my home. I was a disaster.
I first developed pelvic pain and hard flaccid in January last year. I tried various different treatments to get better, pelvic floor physical therapy, chiropractors, massage therapists you name it I tried it. When pelvic floor therapy did not work my therapist started to suggest I may have pudendal nerve entrapment. I was even recomended to have surgery since nothing was working..,
I then began psychotherapy. That did n’t help at all and I cried a bunch but still no help. I tried Sarno’s method and again no help. I had done David Berceli’s TRE but not consistently. I decided to give it a go every other day and I started to notice my anxiety and leg tension disappearing quite rapidly. But for me it was just one part of my recovery. I then came across Restorative Exercise. Restorative Exercise treats the body as a whole. Rather than spot on finger in the butt probing around for 15 minutes with someone telling me I have trigger points. Useless to me but just my opinion.
Restorative Exercise is a type of therapy that gets your body into optimal alignment. The key part to the program for me was walking. It’s hard to explain but walking and natural squatting can lengthen the pelvic floor. I’m not an expert so I won’t try to explain here but walking correctly with glute activation has changed everything. I’ve been working on my body from head to toe on this program but I’ve also had the help of a Restorative Exercise Specialist called David McCoid who was diagnosed with PNE and had 3 pudendal surgeries but none of them worked. He had pelvic pain himself for 14 years and rid himself of it through Restorative Exercise. I have been working with him on Skype for 3 months now and will continue working with him as I seal off my recovery. He is very reassuring and definitely knows the ins and outs of pelvic floor issues. I personally recommend him as he’s been in pain so knows what it is like. The money you pay not only goes towards the sessions but full email support and skype support in between sessions. I can’t tell you how much this has affected my recovery. If you’re interested his website is freedomfrompelvicpain.com.
With Restorative Exercise my hard flaccid has gone. As of right now the only issues I have are slight hip tightness, lower back pain and pelvic floor tightness. However it’s all very minimal and disappearing. Before I had ED , loss of sensitivity, extreme pelvic pain, hard flaccid, psoas pain, neck pain, foot pain , anxiety and depression. Just about everything that comes with HF and CPPS.
User avatar
ezer
Posts: 689
Joined: Sun Sep 19, 2010 6:53 am

Re: Recovered newbie :)

Post by ezer »

Interesting. Thanks for posting.
Last edited by ezer on Fri Mar 06, 2015 4:42 pm, edited 2 times in total.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
FFSeth
Posts: 34
Joined: Wed Aug 27, 2014 5:17 pm

Re: Recovered newbie :)

Post by FFSeth »

Very interesting. It takes the focus off of trying to pinpoint where your pain is coming from. Almost like a shotgun approach. Doesn't matter if it's your pelvis or you back or the way you walk. Good stuff. Thank you for sharing.
LindseyD
Posts: 165
Joined: Thu Dec 04, 2014 7:31 pm

Re: Recovered newbie :)

Post by LindseyD »

Glad to hear. I spoke to him via skype learning.about it. I havent tried though. I feel I have some other issues that arent.as common as some others,so idk if it would work for me. He did say its a pretty agressive excercise though,right? Were u ever diagnosed with PN?
LindseyD
Posts: 165
Joined: Thu Dec 04, 2014 7:31 pm

Re: Recovered newbie :)

Post by LindseyD »

Stevieeee wrote:Hey guys. I am a regular poster on hard flaccid and go by the username of Steviee. I’ve been plagued with hard flaccid and pudendal nerve entrapment/cpps. But it’s now a thing of the past. It all started about a year ago in January last year. Like everyone I freaked out. Googled it for 2 days straight looking for the miracle cure. I was stretching my pelvic floor and sticking my finger in my arse ( not fun). Anxiety took over. I did n’t ever want to leave my home. I was a disaster.
I first developed pelvic pain and hard flaccid in January last year. I tried various different treatments to get better, pelvic floor physical therapy, chiropractors, massage therapists you name it I tried it. When pelvic floor therapy did not work my therapist started to suggest I may have pudendal nerve entrapment. I was even recomended to have surgery since nothing was working..,
I then began psychotherapy. That did n’t help at all and I cried a bunch but still no help. I tried Sarno’s method and again no help. I had done David Berceli’s TRE but not consistently. I decided to give it a go every other day and I started to notice my anxiety and leg tension disappearing quite rapidly. But for me it was just one part of my recovery. I then came across Restorative Exercise. Restorative Exercise treats the body as a whole. Rather than spot on finger in the butt probing around for 15 minutes with someone telling me I have trigger points. Useless to me but just my opinion.
Restorative Exercise is a type of therapy that gets your body into optimal alignment. The key part to the program for me was walking. It’s hard to explain but walking and natural squatting can lengthen the pelvic floor. I’m not an expert so I won’t try to explain here but walking correctly with glute activation has changed everything. I’ve been working on my body from head to toe on this program but I’ve also had the help of a Restorative Exercise Specialist called David McCoid who was diagnosed with PNE and had 3 pudendal surgeries but none of them worked. He had pelvic pain himself for 14 years and rid himself of it through Restorative Exercise. I have been working with him on Skype for 3 months now and will continue working with him as I seal off my recovery. He is very reassuring and definitely knows the ins and outs of pelvic floor issues. I personally recommend him as he’s been in pain so knows what it is like. The money you pay not only goes towards the sessions but full email support and skype support in between sessions. I can’t tell you how much this has affected my recovery. If you’re interested his website is freedomfrompelvicpain.com.
With Restorative Exercise my hard flaccid has gone. As of right now the only issues I have are slight hip tightness, lower back pain and pelvic floor tightness. However it’s all very minimal and disappearing. Before I had ED , loss of sensitivity, extreme pelvic pain, hard flaccid, psoas pain, neck pain, foot pain , anxiety and depression. Just about everything that comes with HF and CPPS.
I joined the FB group of freedom from pelvic pain today. do you know any women with pudendal neurlgia that has been helped with this?
Stevieeee
Posts: 5
Joined: Tue Dec 16, 2014 3:50 am

Re: Recovered newbie :)

Post by Stevieeee »

LindseyD hi. Not very aggressive. it's pretty gentle but gradually increases intensity. Youll definitely notice a ton of changes in your body as you progress.Its awesome knowing the power is in your hands and that everyone can heal from this mess. In regards to your question about women being treated. I honestly don't know. That's something that Id ask David. Just contact him via email or Skype. He's really good about getting back to you quickly and the responses are in depth as well. Whatever questions you have I know he'll get back to you. He's the man!
User avatar
ezer
Posts: 689
Joined: Sun Sep 19, 2010 6:53 am

Re: Recovered newbie :)

Post by ezer »

What helped the most? TRE or RE?
Last edited by ezer on Fri Mar 06, 2015 4:43 pm, edited 2 times in total.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
Stevieeee
Posts: 5
Joined: Tue Dec 16, 2014 3:50 am

Re: Recovered newbie :)

Post by Stevieeee »

Ezer, Yes I still do both! Mainly RE. TRE helps, but in its own way. For me, TRE is just a de-stressor. But in my opinion, TRE isn't actually lenghtening my muscles and allowing me to use my body efficiently like RE. So if I had to choose one over the other, it'd be RE. Change the body, and the mind will follow.
Alan1646
Posts: 162
Joined: Sat Dec 24, 2011 1:05 pm
Location: London UK

Re: Recovered newbie :)

Post by Alan1646 »

On the topic of misalignment causing pain, here is an interesting article that states that there is no scientific basis for such a claim.
https://www.painscience.com/articles/structuralism.php

"Not only are structural explanations for pain generally unsupported by any scientific evidence, the last 25 years of research results mostly undermines them, often impressively."
"if you want to keep a secret you must also hide it from yourself" Orwell
Stevieeee
Posts: 5
Joined: Tue Dec 16, 2014 3:50 am

Re: Recovered newbie :)

Post by Stevieeee »

Just an update, feeling great. No flare- ups. Two days ago I played soccer for 5 hours straight.. Sprinting, jogging, walking, jumping, sliding, kicking, and just horsing around with my friends. No flare up. Yesterday I did a ton of movement. Did a workout yesterday to test where I'm at. Did a 8 mile weighted walk 20 pounds. 8 minutes of a dead passive hang. 20 pull ups. 50 push ups. 30 dips. Monkey bars last 5 sets. And pararell bar crossings. Feel pretty good today. No flare up. Definitely sore though lol In a good way though :) NO PELVIC SORENESS. !!!!!! Been feeling great. Restorative exercise started very gentle. I could feel my muscles lengthening. As I progressed with David, he had me doing full squats and hanging to help with alignment. Then I progressed to the monkey bars which is apart of alignment exercises. I walk about 4-5 miles a day on natural terrain (up and down hills with roots and rocks. Balancing on logs. Hanging from branches. Climbing trees :)) the power to heal is in everyone's hands. I went from a depressed A-type to a strong confident pelvic pain athlete. No pain. If the pelvic boogie man will never come back. I know I have the tools to prevent it and keep my body healthy and well. K know for a fact I couldn't have done this without David Mccoid. I've tried other RE specialist but none pushed me like he did and supported me throughout all of this. I still have skype sessions with him because there is so much to learn about movement. If you have a second, email him! It won't hurt to talk and see if it's for you. Move well, and live your life everyone.
Post Reply

Return to “WELCOME CENTER”