Hello Everyone,
I am new and found already useful Infos on this forum.
I have one question: Can a Entrapment - even from scar tissue - be really seen on a MRI? If yes, is this a clear indication for an operation ? I read that some people have entrapments but no symptoms. So i am a bit confused.
Thank you very much! Lilo
Mri question - new member
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helpmelord
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Re: Mri question - new member
i just had pelvic mris done w/ and w/o contrast. i ws hoping something treatable wld show, since the uro gyn already dx'd me PN entrapment.
after pcp and uro gyn both rvwd - there's nothing there showing entrapment. uro gyn said "you can hv PN neuralgia w/o entrapment"
Not sure if that answers question. now she wants me to find yet another dr. another gyn and urologist to weigh in on matter. i am so sick of running dr to dr, i'm losing hope. it's been a year of this; my partner died, i am grieving, i don''t want or need this issue. plus ibsc and ic too. i'm thinking of a way out of this life. it's awful. i am grateful no cancer, but chronic pain and invisible disabilities are just as bad and isolating as those you can see. so sad, hopeless, don't know wht todo nxt. good luck on y our journey dear. 65F
after pcp and uro gyn both rvwd - there's nothing there showing entrapment. uro gyn said "you can hv PN neuralgia w/o entrapment"
Not sure if that answers question. now she wants me to find yet another dr. another gyn and urologist to weigh in on matter. i am so sick of running dr to dr, i'm losing hope. it's been a year of this; my partner died, i am grieving, i don''t want or need this issue. plus ibsc and ic too. i'm thinking of a way out of this life. it's awful. i am grateful no cancer, but chronic pain and invisible disabilities are just as bad and isolating as those you can see. so sad, hopeless, don't know wht todo nxt. good luck on y our journey dear. 65F
Re: Mri question - new member
Not always. It would depend partly on the MRI you had, for instance Dr. Hollis Potter in NYC has developed a protocol that enhances the pelvic nerves on the MRI and is more likely to catch if there is an entrapment. Many people have had normal MRI's but went ahead with surgery based on other criteria and were found to be entrapped during surgery.
Can you have an entrapment without symptoms? It would depend on the severity of the entrapment and whether or not you engaged in activities that triggered symptoms -- such as heavy exercise or weightlifting.
If an MRI indicates there is an entrapment, but you don't have symptoms, I think you would be wise to get more than one surgeon's opinion before agreeing to nerve release surgery. There is some risk associated with increased pain after surgery.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.