Dr. Dilanyan

[ForgetMeNot]

I would like to leave my story here for everyone who has been suffering for a long time, to show that there is hope! I initially got pudendal neuralgia in 2017. I think it may have been triggered by a minor pelvic trauma but like most cases there is really no sure way to tell. Insert the typical agony here for 2 years: no diagnosis, unrelenting pain - first with sitting and later almost 24/7, I lost my job and had to go on disability, the doctors here in Canada would either tell me it's in my head, or offer narcotics (which weren't helping) or just plainly admit there was nothing they could do. All the usual tests were normal. I thought my life was over. I had to diagnose myself through online research (and this focum helped!) as nobody else was able to. Then I visited three doctors in the US who advertize themselves as pudendal nerve experts (you know the names) ... to little effect: either they were not sure of the diagnosis or their surgery waiting time was 1.5 years and up. Eventually through my research I came across a pudendal nerve surgeon who was not in the US or France - Dr. Oganes Dilanyan who operates both in Moscow (Russia) and Yerevan (Armenia). We communicated through e-mail and phone, and he was able to confirm the diagnosis and offered me a bi-lateral decompression surgery within two months in Armenia. It was done through a laparascopic method and he freed up the nerves in all places where they could be compressed - in Alcock's canal but also between sacrospinous and sactotuberous ligaments (and the US surgeons only offered decompression of the Alcock's canal through a transgluteal approach which does not address the space between the ligaments). I was able to move around in 3 days after the surgery, but because nerves do take a very long time to heal, it took me about 4 months before I felt well enough to go back to work. And I kept improving after. A year after the surgery, I never thought of it anymore and considered myself at least 95% healed ... that's 6 years of no symptoms and having my life back!

I am enourmously grateful to Dr. Dilanyan who literally saved my life, and this review is embarassingly overdue. He is most compassionate and sincerely wants to help his patients, he may also be the only one in the world who is both extremely highly qualified and also accessible (relatively lower cost compared to US hospitals and short waiting times). Not only is he a great surgeon, but he will also hold you by the hand and personally organize additional tests and consultations with other specialists for you if required. If you are still suffering, please have a consultation with him to see if surgery is right for you. Check him out on prodoctorov.ru or find Диланян Клиника on map.yandex.ru (both sites are in Russian) - you will see a huge number of reviews from grateful patients, many of which are related to pudendal nerve decompression. His contact information is below (and feel free to mention Tanya from Toronto if you reach out to him):
dr@dilanyan.clinic
+374 55170303

[Violet M]

Thanks for your story and for the information, Tanya. That's great that you are doing so well!

Dr. Dilanyan's listing on our website has a bit of additional information at the following link:
https://www.pudendalhope.info/european- ... ns/#russia

I believe there are now some surgeons in the US who release the nerve between the SS and ST ligaments at the ischial spine as well as in Alcock's canal. But that is an important question to ask whatever surgeon you are considering going to.

Violet

[jaxi123]

Why aren’t more doctors up-to-date on surgical techniques?

[eraser]

Why aren’t more doctors up-to-date on surgical techniques?

It's because few are interested in it, and there is always surgeon preference. Medicine across the world is largely unregulated.