IC causes flare ups and solution

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
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kat
Posts: 203
Joined: Fri Sep 17, 2010 3:44 pm

IC causes flare ups and solution

Post by kat »

I heard IC often and never know what it was.
My nonmedical understanding is:
an allergic reaction with some foods making them attached on a medebolic level to the lining of the bladder
this causes burning, pain with urination, inflamed bladder and urithra, failure to empty bladder and urgency to urinate

it took 3 months on an IC diet and adding Prelief (calcium, magnesium) suppliment when I feel my bladder starting to burn or fail to empty my bladder

the diet is simple and mostly just requires me to trade some foods for other foods

is the website I got the info from and let me know if you have trouble getting there and I can mail the info to you

I share this because the inflamed bladder and urithra caused pudendal and obturator flare ups as well as burning and pain with any stimulation

good luck
Born with pudendal and obtorator neuralgia. 32 years of being misdiagnosed.
Surgery with Conway 7/14/10. Internal burning cured!
Currently in PT for many pelvic floor issues due to having PN for so long.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: IC causes flare ups and solution

Post by HerMajesty »

The self care regimen is a good one but the medical explanation is:
-medical diagnosis of IC is done by distending the bladder during cystoscopy and looking for "pinpoint hemmorhage" of the bladder wall: it is a form of hemorrhagic cystitis
-IC is not a food allergy. It can be due to several causes including nerve feedback from adjacent muscle spasm, and one possible manifestation of Sjogren's syndrome which is an autoimmune syndrome.
-The reason the IC diet (and prelief) can be helpful, is not that they remove allergens but that they make the urine less acidic and more alkaline, which is less irritating to the IC bladder.
-the disadvantage of the IC diet and prelief is that when the urine is more alkaline, it is an environment many bacteria enjoy. So it is important to drink extra water and empty the bladder frequently to prevent infection. Drinking more water also dilutes the irritants in urine and so further helps calm down the bladder.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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